Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I do not have it but my best friend was diagnosed with fibromyalga 2 years ago. we have been friends for 56 years and i really just wonder what , if anything, I can do to help my friend. I feel helpless and sadly must admit I really do not fully understand what she goes through. I do have very bad chronic back pain but at least it is manageable with medication. however for her so far nothing seems to help. What is the best thing for me to do? Is there anything I can say or do that will help her? I want her toknow I care about her all the time but I do not want to bother her either. Any ideas?
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We're all troubled.WSo, to remind ourselves we're not at rock bottom (this is a reverse optimism thing I learned as a kid):We are not living on the island of Krakatoa when the volcano goes boom!Yeah, okay, that sucks.***Toay in 1942, Pierre Laval announced that the way to free France was for Germany to win WW2. Pierre did not win a lot of friends. When the war ended, quite quickly he was tried...
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Another day, another ouchie?My bruised achilles tendon (don't ask) makes my foot numb. Wonky on meds, whacked it.Now, as to fibro:A lot of reports are going around some parts of social media that fibro (and dang near anything else) are caused by post-Covid, post-flu, post-vaccinations, post-pick-something.1. Your risk of death or serious complications beyond "ow, that shot hurt!" are typically...

I recommend the book "Fibromyalgia for Dummies." It is available on Amazon. Good, comprehensive book on this comes illness. We recommend this book a lot.
Respect her limits and don't act disappointed or angry when she has to change or cancel and. Listen. Don't disappear; many of us have lost friends who just aren't willing to make an effort. Thanks for asking. I wish more people would follow your example.
There's an article that, for me, rather nails on the head in a very comprehensive way what the energy limitations of fibromyalgia feel like for me. It was written by a person suffering from Lupus, but many chronic fatigue and chronic pain patients identify with it.
http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
Have a great day!
I could not get through this without them.
My suggestion is to ask your friend specifically what you can help with. Maybe she needs her dry cleaning picked up. Maybe her next appointment is two hours away and its too far for her to drive. Maybe she needs you to take her on a long, quiet drive througj the woods so she sees something besides her own four walls. My point is, only she can tell you what she needs. Just please be sure you follow through. Three people had previously promised me meals, and this lovely gal was the only one who actually brought them.
Over time, it changes a person. We cannot do what we used to do, whatever that used to be. And often if we try, we pay dearly -- for days. So we have to pace ourselves, which usually means that we can't say "yes" to all the things that we used to do.
Medications sometimes help, often times not. We are also not able to be as fierce with our physical activity. Weight gain is common. So then we don't feel as good about ourselves. We also might not be able to attend certain functions because our weight fluctuates so much we simply do not have the attire.
Fibro is financially draining. Many of us can only work PT or are on disability. Some of us work FT and that takes so much out of us we don't have a lot of energy left for other things. Many people who do work, work to pay for medications which can be very expensive. Some of my friends don't understand why I don't have the money for things, but "live a life of leisure" by not working full time. Meanwhile, my husband is paying all the bills and trying to save enough for retirement for both of us to live on, so no, I don't have money for concert tickets that are $300 a seat (seriously had this convo with a friend.) So thank you, from all of us, for trying to understand. Ultimately, as others have said, only your friend can really tell you what she needs and understand those needs might change from time to time based on the fluctations of her symptoms.