Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
it's been one year since my diagnoses. Since then I've stopped working due to a nervous breakdown. I was a high school teacher and I'm 56 so I will take early retirement. Thank God my husband has a good job. My problem is I don't have anyone to talk to about my pain. And, unfortunately that is the number one thing on my mind. I think everyone gets tired of hearing about it. When my husband asks me how my day was, what am I supposed to say?
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Welcome to the Perseid meteor showers, the "biggies" usually every year. (The Leonids beat 'em one year IMHO).AND today much of the northern hemisphere will see 5 to 99% solar eclipse. How cool is that? Your best bet is to be in the UK or norhtern Spain, where totality is excellent before sundown. Me, I'll get a super duper tiny itty bitty slice of it, so little that it won't be noticeable. New...
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... observed a solar eclipse.
Many people do not understand because we "don't look sick"
I have sent you a friend request and can be someone to talk to
Laura
Friends and loved ones, even when they are trying, can be tiresome in their "ignorance" (it sounds so harsh, I don't blame them for not understanding - it's physically impossible for them to relate to chronic pain).
Feeling truly understood is a part of feeling really seen and validated. It can be frustrating and hurtful when people close to you don't know what you go through, or that they only know the situation in broad strokes because it's hard to explain the million and one details and factors that go into daily pain.
There's a daily check-in where people go to chat with each other, catch up on how people are dealing with their daily fibro-malarkey, and vent about their own problems to understanding ears. Or eyes, I suppose.
Welcome again and hope to see you in the check-in.
It should hopefully not be too hard for your husband to understand that you on the one hand don't want to drown him in a deluge of details about all the discomfort, while at the same time it might breed a lack of understanding between you two if you tell him you were "fine."
I know Leo has something worked out with her husband with coloured paper on the fridge that signals how she's doing that day. Maybe you can agree on a short-hand like that about the severity of your pain with your husband? That way you can keep him in the loop about how you're doing without having to go over every ache and pain of the day.
My daily strategy is to focus on the things that I can be grateful for like a roof over my head, a loving relationship with my partner and so on. It isn't emotionally healthy to be thinking about pain all of the time. There is more to life than just pain. I'd like to gently suggest that you consider counseling. The best type of counseling for this situation is called "Cognitive Behavioral Therapy." It will give you tools to better cope with a diagnosis of chronic illness. Depression increases the perception of pain so it is very important to address this issue. Many of us see someone for extra support.
Join us on daily check in hosted by our lovely spokesmodel Leo the Puma. She provides us with interesting trivia and funny stories every morning. We share some tidbits about how we are feeling and our day. Sometimes we are all quite chatty and the thread continues into the evening. You can lurk and just read or let us get to know you better. This is a very good, caring group. No judging here.
I'm glad that you found us. You are not alone!
Leo (me) has a color code worked out, LOL. It's based on a traffic light. I have three pieces of colored paper undre a magnet. Green means "Doing good". Yellow means "Ouch, caution, help". Red means "Don't even get near me unless it involves chocolate, a heating pad and you doing the bleeping dishes without complaining". (Or whatever works in your household.) I update it at morning noon and bedtime, and it helps us a lot. Hubby sees the fridge, and he knows when to walk on tiptoes....Other people use an erasable board, some use magnets with happy or grumpy faces, you name it. It spares me a lot of explaining, and Hubby a lot of asking.
Welcome to our group, and glad to meet you!
Welcome to the group Jami! Yeah the pain is a regular pain. My dad told me about a year ago that if he complained about his pain the way I complain about my pain he'd never shut up. Ummm, HELLO!!!! You don't have Fibro, you just hurt. Big difference!!! My kids know when Mom is in bed crying to either get Grandma or heat because it's either bad memories or it's pain. Eh, we'll all get through the ouchies together!