Welcome to all the newbies. Glad to have you on board. Dito to what everyone else is saying. I had someone a couple of months ago tell me that I must have a low pain tolerance because I have to take meds three times a day to be able to work. That burns me up! I'm so glad I've got my fibro goupies. Good luck with the Savella.

I'm still half convinced there's something else wrong with me. I was just diagnosed five months ago and I can't understand how people are expected to live like this. And it doesn't help that no matter what I tell people who don't have fibro, they just don't get how I feel. The sad thing is, they never will understand.

Anyway, welcome to the group and I hope you have a good day today.

Yes this illness is so strange affecting everyone in its on way. I have had fibro since 2000 or 2001 but for me over the last year the pain has increased so mchI often wonder if there isn't something else wrong. My Dr agreed too and had me rechecked for MS and sent me to a neurologist who told me I surely did not have MS but was not sure what is was and referred me to Cleveland Clinic Neuromuscular Center, still waiting on test results and have to have a cervical MRI since I do have some buldging/herniated disc not real sure how that would have anything to do with my legs but they are the dr's. hope you have good luck with the med increase.

Welcome to the Group!

It's not that we have a low pain tolerance, its that we have 4 times the pain neurotransmitters running amok in our systems as non fibroers. So it's no wonder we feel more pain than any one else.

I've been on Savella for almost a year. It helps a bit (pain down to an 8 from 10) but it causes me to sweat...a lot. I'm also on methadone and zanaflex and on most days I function at a 6 or 7. I have real bad days sometimes though and everything I do aggravates it. I hope the meds help you some. I know how hard it is to live with this debilitating disorder on a daily basis.

Leanne

Welcome. I thought I had bone cancer too. My grandpa died from it. I also think"voodoo doll" type stuff. Now if I get stabbing sharp hat pin pain I just say voodoo doll to my family and I don't have toexplaine why I put my hand over my eye and squealed. Spelling?
That is only one type of pain I get but it is like someone has a little doll of me. Ha! Nothing against people who practice Vodou. Just feel like I'm in a B- horror movie sometimes.

Welcome!! So glad you are here! Lots of great people here. i've been on this site since 2008 and it's been a lifesaver! Nothing like talking to people who know what you're going through because they are going through the same thing!
I'm sorry your pain level increased, I hope the increase in Savella will help you.

I find sometimes a bad flare up, even though I know better can sneak up on me!!
You are not a wuss, it does hurt without rhyme or reason. It is good to try and distract yourself. Don't focus to much on it or yes you will have a melt down...
Great way to do it, is come on here and talk to others. Or set goals for yourself and ways to achieve them. Make them achievable goals so you feel a sense of accomplishment too.
These are the things I do for me. I try and mind of matter it and take my medication as little as possible. I am on pain meds and muscle relaxers and try to avoid them, I do not want to be dependant. The lyrica helped with my symptoms a lot but I had side effects from taking it, might try it again though because it helps with my siezures too.
The long and the short of it. Yes it does hurt that much and know one knows but us becuase nothing is broken and we "look fine" even though we sure don't feel that way.
You will encounter people who will judge you! I just view them as beneath me, lord knows they couldn't handle the pain we do each and every day!
Cheers

Welcome. YEah fibro can be that painfully - fibro sucks. Hold your head high and try to ignore people who don't get and say insensitive things. We fibro people are strong and brave.

L

Sorry for all the typos- it happens a lot with my kindle fire. But it is convenient to use when you are laying down .

l

I was on Lyrica and Savella once but had to get off for certain reasons. I hope treatment works well for you! You have my support. Trust me, fibro sucks!