Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

mommies4
Not that there's really any pattern,however My ( Flare's have sometime lasted 4 5 mths. I had been in what I've called a stop and go pattern.on for min of 3 mths lasting 4 1/2 off for 2 and back on.
I've now been into this Pain pow-wow since Feb.2 of this year,semms like it's just not gonna END !!
any in-sight would be GREAT ! Thanks Everyone..
I've now been into this Pain pow-wow since Feb.2 of this year,semms like it's just not gonna END !!
any in-sight would be GREAT ! Thanks Everyone..
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The reason I ask is because if you're just in pain, part of it could be that you have myofascial pain where the muscles get knots in them that refer pain elsewhere. The thing about myofascial pain is that it comes and goes at random, there's no rhythm nor reason to why you're in pain in a certain place and it can be any place on your body from the top of your head to the soles of your feet. Myofascial pain goes hand-in-hand with fibro but few doctors bother mentioning it to their fibro patients leaving us to suffer needlessly.
The good thing about myofascial pain is that you can learn to do trigger point massage on yourself to break up the trigger points [the knots in the muscles] so the pain will subside. I've had this for 40 years, and was in absolute agony for years on end until I learned trigger point massage and am now painfree about 85% of the time.
Other things to think about are possible side-effects from meds as so many have side-effects that mimick fibro so it's hard to know what's actually fibro and what's a side-effect. A lot of meds have muscle pain, numbness and tingling as side-effects so if you have a few minutes, google the side-effect of any meds you're on. If you consume artifical sweetners, especially aspertame [nutra-sweet], that will increase your pain. Aspertame is in something like 14,000 products!!! It also causes MS type symptoms along with miscarriages.
Another thing that is common in fibro patients is unrecognized food intolerances and sensitivities that mimick flares. I can't tell you how sick I was for years on end due to that and unrecognized side-effects from the meds I was on!!! I was to the point of being virtually bedridden half the time. Once I realized I had all the food intolerances/sensitivities and cleaned up my diet along with going off my meds due to nasty side-effects, I got back to feeling decent overall other than fatigue and memory loss.
I am sorry to be the bearer of bad news, but to be very honest - my fibromyalgia set in back in July of 2003 and it has never gone away.
However, my experience may be completely different from yours & I pray that it is!
I can say with proper treatment & lifestyle changes, we can have some better days where we can endure it. :)
I do have multiple problems so mine may not be only fibro, but the fibro pain is obvious & mine only allows me to get out of my bed after I take my medication. As son as I open my eyes in the morning (or shoule I say at lunchtime!) - it never ceases to shock me how bad I hurt. I take my pain meds immediately & within about 45 minutes I can get up & get my coffee.
I believe it is all in how we try to cope with it, too.
(And I used to be a very athletic, fit, busy, working girl & Mom of 3 who always had energy)
But, after adjusting to this diagnosis in 2003 - I have allowed myself to think positive & always remember that it is not life threatening & it could be much worse. I could have cancer or something, so I consider myself lucky.
I use OTC menthol pain patches...not the prescription ones. I put them in every painful place but I do spend a small fortune on that.
I do stay in my bed but I have come to love it. By the way, the beds without any springs are the best! Once I finally invested in a memory foam bed (not just the mattress top)...I sleep better.
I have my own TV next to my bed. I have my computer in my room but it hurts to sit in the chair so I am getting a cheap Tablet PC. Laptops are impossible to get comfortable when you cannot sit or lie any ways to prop it up.
I am just chattering away, sorry. It is the middle of the night & the only time I feel a bit better...
Anyway, I gave up my sports & now I enjoy new hobbies at home like making dolls, playing with my little tiny doggys. (I used to raise & show large Golden Retrievers but also had to end that)
I take a few easy courses online.
I play games online to keep my fibro fog brain a little better off.
(My memory was affected by fibro) I cannot comfortably sit & play games at a table. But, I have a lap pillow desk to prop in front of me & I can read & write...(I cannot hold books to read)
What I am saying is even if it does continue, you will learn to make adjustments to deal with it & find peace.
And, hey, there are new great treatments coming out more all the time.
Back when I first got it, nobody believed me. Nobody even thought fibro existed but many doctors today understand it better.
God bless!
However, pain pills will ease other medical conditions.
It does make a huge difference to understand the entire situation with the pain, where it is triggered from, and what works to reduce the knot pain. Trigger point massage is effective at immediately reducing the flare-up from screaming to a dull ache.
Medicines affect each of us in a different way, so it is a matter of finding what works best. Keeping a detailed journal is a must when trying to find out what works and what doesn't. it doesn't take long to do, and after a few days, you will find a pattern in the level of your pain symptoms.
Hope this helps.
You are not alone.
I find that if I'm going into a bad pain cycle that if I take pain medication I can stay on top of it. If I don't and try to ride it out it will be much worse and harder to get under control.
I have had fibro for 13 years but never this bad. Every muscle and nerve in my body is screaming.
sugarbear75's suggestion of using apple cider vinegar in the bath to pull toxins out is a good one. With the myofascial trigger points, people with fibro produce twice as much lactic acid in their muscles in half the time as a normal person and it takes twice as long to clear from our systems. If you don't have high blood pressure, you can add a pinch of baking soda to a glass of water to help oxygenate the blood as low O2 levels in one reason why it takes so long to clear. Excess lactic acid causes muscle pain.
My husband surprised me w/ a great gift... he said he is replacing our broken hot tub( it been broken for 4yrs). We went looking yesterday!!! Cant wait! Thanks Hubby!!
1) when is this flare going to stop? It's been 2 months, and i'm just tired of the pain and am starting to feel it all over- previous posts here are not super encouraging.
2) I'm on amlodipine but feel like it's just out of control- when is it time to change meds? push for more tests? sit in a corner and cry?
ok yes I'm a noob, and a bit of a disaster.