Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hello friends, I am struggling after being a mess with this heat. I have had fibro for a long time , I'm 59 yrs old and have had it to the point that it impacts my life for 20 yrs.
The problem I'm having with myself is that I feel between a rock and a hard place. When it comes to family and friends, most of them think that I should be able to push through and don't understand HOW many times I do try to push through. If I tell them I think I will have a hard time going somewhere do to the weather conditions or having to walk to much or whatever - they kind of roll my eyes. If I'm not honest and go anyway then I end of struggling and having to tell them I have to leave. I'm always the person having to leave and if you knew me you would learn that I love to partake and socialize and help clean up , etc.
How do you all handle this without beating yourself up ??? Any help or experience would be great !! Thank you so much.
Don't know what I would do without my friends - God bless you all !! xo PJ
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Another day, another ouchie?My bruised achilles tendon (don't ask) makes my foot numb. Wonky on meds, whacked it.Now, as to fibro:A lot of reports are going around some parts of social media that fibro (and dang near anything else) are caused by post-Covid, post-flu, post-vaccinations, post-pick-something.1. Your risk of death or serious complications beyond "ow, that shot hurt!" are typically...
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Years ago, I won a mirrored armoire from my job. It's in my bedroom but I rarely stand in front of it. Yesterday, I had to have a dexascan done so I had to change into a gown. There was a full length mirror in the changing room. I'm aware that I gained 5 to 7 pounds over the last year from cheating on Keto but I didn't know what it looked like. It was a reality check.
Do you have a folding transport wheelchair for places that require a lot of walking? Or, a folding rolling walker with a seat? I have both. Get your doctor to write a script for one or the other to have some insurance coverage on the purchase. Being able to sit when you need to helps a lot. If you get a transport chair make sure that it has big wheels to better negotiate different terrain. I also have a couple of canes.
I have battery powered handheld fans and a cooling towel too. You wet the towel and it stays cool. I use it for gardening and other outdoor stuff.
Do you have a handicapped parking sticker/license plate? Ask your doctor to fill out the application for you. You may not need it every day but it does help save energy when you are not feeling good or it is too hot outside. I don't care what other people think of my revolving fashion statement of chairs, walkers and canes. They keep me safe, I can do more and have a better quality of life.
It is unfortunate that your friends and family lack understanding. We have all experienced that to some degree. If you need to stay in because it is too hot, just say "no." Why put yourself into a flare that could last weeks for a few hours of entertainment. Not worth it in my estimation. Take care.
I understand wanting the social contact, but if you can keep it indoors (say, ask to be in chrage of lemonade or something?) and people are coming-going?
I will look into some of your suggestions Fantod and I love the being in charge of lemonade suggestion Leo. You both helped lower my anxiety and made me smile.
I'm grateful for you both. Blessings and a warm, gentle hug to you both. xo