Yes, I understand what you are saying completely. I get fatigued easily and then have difficulty speaking. I particularly hate the phone. It requires a level of concentration that I rarely have any more. It exhausts me to hold the phone, try to focus and speak. Kind of like walking and chewing gum at the same time - lol.

Burning eyes are another thing altogether. I do have dry eyes which are noticeable worse when I'm tired. You should probably see an ophthalmologist to get your eyes checked.

You are not lazy. You are being pro active by resting when you need to rest rather than pushing yourself. Making smart choices like that is better than bringing on a flare. Take care.

i can feel that way if my tmj acts up... but not the eyes.

ditto suggestion to see eye doc. To be safe.

rest away. i have laundry that may walk itself to a washer at this rate!

My mom had that issue and it turned out to be Bells palsy. Some days nota problem, others she couldn't move it and it looked droopy. I would check with your doctor just in case.

First, Go To A Doctor. Seriously. Go.

Second, You are NOT lazy. You are fatigued. There is a HUGE difference. You are entitled to take care of yourself.

Now go to a doctor

I totally relate to what you're describing. I have CFS in additiona ot my fibro and there are SO many days that the energy required to talk is overwhelming to me (although that is part of my Bipolar rearing it's head). I get period of exhaustion...which is totally different from being tired...it is fatigue that makes my whole body feel like there is a drain in my body and all of my energy has seeped out and been washed away. It is hard to take a shower because lifting my arms and standing seems overwhelming. During this time my eyelids feel like they weigh 1000 lbs, my skin feels like it is slipping off my face and my mouth feels like my lips are sewn shut. And when I am SUPER tired my eyes do burn...like they are telling me that the only way they will stay in my head is if I close them for an extended period of time.

Wow...there are some disturbing images in that paragraph...but hey this is a disturbing illness...gotta keep it real...

Scootermom,

I can absolutely relate to what you are experiencing. When my fatigue gets that bad, not only is it hard to speak (and the other things you've described) I also find it hard to listen and concentrate. Sometimes I'm so fatigued that I feel as if I'm completely drunk. It's hard to function that way and it is extremely frustrating. YOU ARE NOT ALONE!! XOXO

Thanks for all the replies! The episode passed, and the next day I was back to normal. I will mention this to my doc and ask for an eye doc referral. It's uncanny how similar your experience is to mine, Cinaroark.
I try to pace myself in daily activities, to avoid episodes like this. Just wish I could do more....

Ditto to everything here. Honestly, I was told years ago tht FMS was not progressive. Ai have not found at to be the case. I have gotten more fatigued, in just they way you describe--can't lofty arms up, etc.-- and over time, I Have gotten more and more distinct illnesses.

As far as I'm concerned, all my research has led me, along with my experience, to e fact that this is a central nervous condition, has a physical cause ( not some weird psychological problem ) and effects literally the entire body. That is where your CNS goes! Everywhere on your body. Sad, but that's how it's working in me.

Hi scootermom,

so glad the episode has passed. I think its a great idea to mention it to the Dr. when you go next time.

I all so get like that, and I use to love chatting on the phone, but like other have said, the phone and I are no longer friends. I find it just too taxing to the whole thing, I love short text message. I can read them over before sending, just to make sure I make sense.

I was getting the burning eye, which turned out to be dry eyes, and that my eye ducts were closing up, and had to have them lasered to ope them up again, not the tear ducts, but the other ducts.

So seeing an eye Dr. might be useful too.

And I agree with the other, you are not lazy. You just fatigued and that takes a lot out of us.

Sending you some caring, positive thoughts.