I just wish that I could get the same answer that you are seeking. I've asked so many medical specialists and I still get the " deer in the headlight look". I don't think anyone knows what takes place within our bodies. My body changes dramatically when the cool weather begins. I perspire profusely during summer, but just a few weeks ago as temps start to cool down, I can be sweating profusely; however my hands, ears, nose, feet are like ice. I'm trying acupuncture and this new Dr. believes it may be hormonal. I disagree because it would be consistent if related to hormones. This year we've already had frost and the colder that it gets, I seem to freeze and burn up alternately. I haven't been able to tell with acupuncture. Someone suggested that I check out hyperhydrosis- which dermatologist treat. No luck. They diag. me with secondary hyperhydrosis because they believe it is related to another pain disorder called RSD or CRPS which I have been diag. with. along with several others. I do have Reynauld's which does cause our feet, hands, nose, and ears not to receive correct circulation. Wish I had answers, but I too am still seeking them. I use bamboo sheets because they are cooler. Can't even tolerate a blanket on me now that it is colder. I know what you are feeling and I extend my thoughts, and I wish I had answers. All I can say is I know what you are saying. It is horrible for others to see us this way when we are able to get out, but no one seems to know. Would welcome any suggestions or hints if anyone else has experienced same. Don't know if this has helped, but at least you are not alone.

I tell people (who b***h about me needing air conditioning when they're cold) that my thermostat is broken. If everyone else is comfortable, I'm sweating. If everyone else is cold, I'm comfortable.

That said, I cannot tolerate cold on my back (nerve damage) so my trick during the winter (when I still need a cold breeze on my face and neck) is to drive with the butt warmer on high, my winter coat open and the air conditioner blowing on my face.

Part of this is Fibro, part is a side effect of two of my meds.

I also break out into a major sweat when I get out of the shower. While getting dressed/putting on makeup, I have the ceiling fan on as well as the fan on my floor. I feel like I'm suffocating when I don't have air blowing on my face.

That's why God made people who made cars w/dual air conditioning settings and dual front seat butt warmers. : )

This kicks in big time when I try to sleep. There is no comfortable temperature. If I get to cold, I hurt like the dickens, but if I use covers, I'll alternate between sweating through the sheets and then freezing.

It almost feels like breaking fevers, but I can't tell if it is a real fever or not.

My husband likes it a great deal in the winter because my core temp will rise and I can warm a king bed almost as well as an electric blanket.

Yep, it's like being your very own nuclear power plant. It feels like this intense heat is coming from your core and radiating out through every pore, every inch of the body. It's another cosmic joke on me - I went to school in upstate NY because I loved the cold and hated the summer heat. Now I always feel like I'm in the midst of a heat wave. Whoever's in charge has a sick sense of humor. : )

thermostat broken cold when its hot out & hot when its cold! never know i have to ask if anyone else is cold ! freezin now & its 75* outside i have sweater & sock on outside! to watch sunset!

I think maybe it's an immune reaction is my humble opinion. Like the body spikes fevers to get rid of infection, so maybe it does this to us to try to get rid of the fibro. Just my thought.

I find that going barefoot as much as possible or wearing very airy shoes (without socks or hose) is a big help in my body knowing what temp to be. It sounds nuts, but it seriously works for me.

This sound so much like me and my life! I wear layers in the middle of the summer and winter.

I walk and half way back even when its is 47 out and I am walking in shorts and a tee shirt I am dripping wet.

The word AC is dirthy!

The winter months are no better either to hot or two cold never just right like the three little bears had it!

Regulate temperature is a thimg of the past I can not wait till I start the big change, that really should be lots of fun!

Stopping it, if you find the answer please lets us all in on the seacret! All I can say is once again layers the can go on and off as needed!

Sue B

I was just thinking....I know that I've always had problems regulating my temperature when I was overtired. I think that's actually pretty common. I wonder if the severity of that broken thermostat is medication side effects + the constant state of complete exhaustion.

seems we all take different types of meds so I strongly feel its a broken thermostat thing, alot of us have Raynauds which to me is in the same family of illnesses. We just can not go from running to smiling! I already have gloves in my purse and have used them already... alot, so I am out walking with my hand held weights fancy new clothes( capris, short sleeve sport tee, and jacket) and by the time I am half way home the jacket is off the glove are off and I look like I just stepped out of a shower.

I believe all of us are completly wired differently with this condition! I think it affects our sympathatic nervous systems and we just re-act so differently then the "normal" person! I agree Meds can mess with these reactions, also!

I guess we are just SPECIAL in so many ways! :)

I always wore sweaters in summer and sandals in winter and people said I was crazy while growing up then 3 yrs ago it changed when its cold I'm FREEZING and when it's hot it's like I'm running 10 degrees hotter then everyone else.

But maybe it is just normal for us? I never realized it was related. I'm sorry your having a hard time with it.

I always just try and make myself comfortable with fans/ air conditioners and dress well i.e. thin airy clothes or layers in case I get hot I can take some off. I also keep water cold in fridge encase. Oddly enough I hate showing skin but sometimes its about being comfortable when warm/ hot wise so I adjusted to wearing tank tops and shorts. In winter I usually stay as warm as possible and wear thick socks too.

Hope this helps. Good luck.

Oh my.... It never occurred to me that this could be an FM thing. DUH!!
I have had this problem for years, like 20 of them! LOL
The initial belief for me was peri-menapause, but after a total hysterectomy, even now 13yrs later it is still a problem. Hot showers are nice to loosen muscles but I have to rinse in cool water just to regain enough strength to get out. That helps with the after shower sweating also. During colder times I have learned to like fancy scarves. It keeps a breeze from the back and neck and sometimes looks pretty. Other times I just look like a freak but, eh, what can I say.
Unfortunately I don't think there is a way to stop it but trial and error will help you find tricks that help you have at least some control.
Good luck
Amy

Dear JORGEE - Yeah, ain't we "special". LOL I am in the mountains, UGH, where cold & damp are life. In the middle of last July, I was wearing polar fleece shirt and winter coat. I looked insane! BUT I WAS SO COLD!

Fortunately, this year, it was 90's most of the time and dry. I WAS IN HEAVEN!

Dear ANONYMOUS - I am so there with you. I look like a polar bear waddling around here in the mountains. I get dressed, put on my heavy housecoat, socks, my thickest slippers, etc. I also have a lap electric blanket and heating pad at my chair.

I wonder if living at the equator would be good as the temps would be steady??? LOL

DEAR AMY (AKR965) Yeah, I've gotten into the scarves lately. Amazon.com has some great buys on silk paschans at $4.95. Surprisingly, they're light weight but warming! I got one originally as a gift and now I'm buying all kinds of colors! LOL