Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi there I am new here but will just get right into it as I feel I have not much patience left, I am waiting to be diagnosed for not nice but arguably bearable symptoms I have felt for 6 years but only triggered into what I feel might be fibromyalgia in the last 4 months.
I am 22 years old and my life until now has been "action packed" (My way of saying nothing but stress!)
I sought out doctors a number of times in England where I had been living and finally found one who was mildly interested and ordered I see a physio until we got to the bottom of things.
Before I could get there I immigrated to Egypt and got married, fell pregnant. Long story short, I really endured a lot.. the time of the birth came , I needed to have a c-section, I didn't realise at the time but it completely traumatised me. I was shaking with fear before they even got to anathetise me which for anyone who knows me would know is completely out of character, to make matters worse , no one was allowed to be with me because of hospital rules. Fibromyalgia symptoms began and I have burned my self into the ground trying to care for my precious daughter, who is the love of my life. This is the love that has carried me through on weeks where I would go three days without sleep and little food/water all the while consumed with guilt and frustration that she deserves a better mother. I would .. and still wake up in the night not knowing where I am or where she is, rocking a baby that in her bed but I don't remember how she got there. I don't have the strength to hold her some days or I can't look at her for the feeling that I have failed... but I must continue because there is no other option.
I have a long list of symptoms, but I am very wary since it was difficult to get what I needed in the UK let alone here and we don't have the money to keep seeing doctors when some days we hardly have money to eat. I have seen too many doctors who don't even care to listen to me and taken too many injections I don't know even what they are, I have no friends, I don't speak the language well and I am scared that I can't open a jar some days or get the right words out... not one person around me can understand and can be very derogatory because of their misunderstanding. I just want this to end. I am sorry for rambling but I don't know where else to turn to. Thanks for reading
I am 22 years old and my life until now has been "action packed" (My way of saying nothing but stress!)
I sought out doctors a number of times in England where I had been living and finally found one who was mildly interested and ordered I see a physio until we got to the bottom of things.
Before I could get there I immigrated to Egypt and got married, fell pregnant. Long story short, I really endured a lot.. the time of the birth came , I needed to have a c-section, I didn't realise at the time but it completely traumatised me. I was shaking with fear before they even got to anathetise me which for anyone who knows me would know is completely out of character, to make matters worse , no one was allowed to be with me because of hospital rules. Fibromyalgia symptoms began and I have burned my self into the ground trying to care for my precious daughter, who is the love of my life. This is the love that has carried me through on weeks where I would go three days without sleep and little food/water all the while consumed with guilt and frustration that she deserves a better mother. I would .. and still wake up in the night not knowing where I am or where she is, rocking a baby that in her bed but I don't remember how she got there. I don't have the strength to hold her some days or I can't look at her for the feeling that I have failed... but I must continue because there is no other option.
I have a long list of symptoms, but I am very wary since it was difficult to get what I needed in the UK let alone here and we don't have the money to keep seeing doctors when some days we hardly have money to eat. I have seen too many doctors who don't even care to listen to me and taken too many injections I don't know even what they are, I have no friends, I don't speak the language well and I am scared that I can't open a jar some days or get the right words out... not one person around me can understand and can be very derogatory because of their misunderstanding. I just want this to end. I am sorry for rambling but I don't know where else to turn to. Thanks for reading
-
We're all troubled.WSo, to remind ourselves we're not at rock bottom (this is a reverse optimism thing I learned as a kid):We are not living on the island of Krakatoa when the volcano goes boom!Yeah, okay, that sucks.***Toay in 1942, Pierre Laval announced that the way to free France was for Germany to win WW2. Pierre did not win a lot of friends. When the war ended, quite quickly he was tried...
-
Another day, another ouchie?My bruised achilles tendon (don't ask) makes my foot numb. Wonky on meds, whacked it.Now, as to fibro:A lot of reports are going around some parts of social media that fibro (and dang near anything else) are caused by post-Covid, post-flu, post-vaccinations, post-pick-something.1. Your risk of death or serious complications beyond "ow, that shot hurt!" are typically...
I'm pretty tired right now but did some quick research on Google:
Yasser M. El Miedany, MD
Specialty: Adult and Pediatric Rheumatologist, Physiatrist
Address: Rheumatology & Rehabilitation
Ain Shams University
2 Italian Hospital Street
City, State Zip: Abbassia Cairo, Abbassia Cairo 11381
Country: Egypt
Phone: 02-62-40207
Date Added: 2008-05-20
You want to see either a rheumatologist or a neurologist for a firm diagnosis. A university teaching hospital is always your best bet when your choices are limited. I hope that this listing is still active. If not, call Ain Shams University and see who they might recommend. I will try to post more later. Take care.
Above is a link to a few more rheumatologists in Cairo. Sometimes doctors just don't respond well to patients with chronic pain and similar symptoms, but if any sort of specialist should be able to help you, it is a rheumatologist.
I am so sorry that you are going through so much. That sounds miserable. Hopefully this helps. Also, just having an online community like this one can be really encouraging!
Good luck :)
Even here in the USA, many of us have had some pretty terrible experiences with doctors. Fibromyalgia was just recently given its own diagnostic code making it a *real* disease at long last. That will make it harder for doctors to ignore us.
Please keep in touch with us. You are not alone!
For the rest, keep checking in with us. You're not alone by any means. Fibro and motherhood are a lot to juggle of themselves, let alone the rest, but we know about the fibro at least.
Soft purrs of support,
Leo
I am confused as to whether I should seek a rheumatologist or a neurologist, I don't want to go to a rheumatologist when my pain is not so severe and he turns me away. Does anybody know what kinds of questions they ask you?
Before the lightbulb in my head went off that my physical ailments and suddenly uncontrollable emotions are linked , I pondered the idea of counselling or therapy but even though I wasn't overly keen on the idea because I spent most of my teenage years in therapy in the UK I realised I don't have time to sit and drink a coffee or someone to watch my daughter so I can wander around the city like a lost lemon! In any case I seriously considered talking to the British embassy though was deterred after a quick look at their website and learning I was not entitled to much, even if I flew to England for a treatment. I will explore further though anyhow :-)
Sending good wishes all your ways!
I would suggest, when looking for a doctor, that you ask if anyone specializes in Fibromyalgia or chronic pain. That way you won't waste your time. I would suggest a Rhuemy first.
Try to get rest when you can. My doc gave me an online site to go to for depression. As soon as I find it, I will let you know. (I lost the paper she wrote it on).
Good luck.