Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

4,403 Members
50,123 Posts
1 Online
Muscles & Bones
/ Fibromyalgia Support Group

Fibro + Vitamin D deficiency?

LiberaMe
LiberaMe
Over the summer, my doctor discovered that I have a MAJOR Vitamin D deficiency in addition to FM. Last year, another FM patient friend of mine got the EXACT same news--coincidence, or something more? I haven't started researching this connection yet, but I am wondering if anyone here as been told the same?

My physician gave me three 50,000mg capsules of Vitamin D to take, once a week. I still need to go back and see if my body absorbed it at all. The friend with the same diagnosis said that he saw NO change with the capsules, and now he has to go for injections otherwise his body simply won't absorb/process/whatever the Vitamin D.

Anyone else experiencing this? I thought I was crazy, because when I got to Colorado last fall I would have sworn I felt better going out in the sunshine here (which is pretty hardcore being a mile high!), but now I think it's connected to the deficiency. My doctor said she's never seen anyone with lower Vitamin D levels--ever.

Thank you for your feedback!
deleted_user
deleted_user
I have a major vit d deficiency as well. But I have lupus, and that causes it. I am on 3000 iud a day. Mine is really low. The sun is my worst enemy because of the lupus! It sucks!
deleted_user
deleted_user
I have heard this too...so I started taking it and I am the BIGGEST advocate for it!!! I started to feel great!! When I got my levels checked my doctor had to tell me to stop taking so much because he had actually never seen levels so high!! I also will occasionally go to a tanning salon as well. However, I don't do that more than a couple times a week at the VERY most and if I do I don't go EVERY week. I also live in CO. and it can get pretty tough with the constant weather changes here. The vitamin D though has really made a huge difference for me!!!
AdrianaIna
AdrianaIna
The question here is whether the fibro is caused by/contributed to by the low D levels, or whether people with fibro and other conditions have vitamin absorption problems. Or both. Anyone have any insight?

My levels were low, too. They are now within normal range (barely, despite getting sun all summer) but I don't know how long it takes to feel better when levels are low.
deleted_user
deleted_user
My daughter who is very healthy but just starting to show some signs that worry me is also testing very low for Vit D. She was put on a prescription a year ago and still is testing low.

I have a sun tan and am very low. Still on prescription myself.
milily
milily
My vit d levels have been normal when checked, so Dr didnt want me take any.
deleted_user
deleted_user
My vitamin D was found to be critical too. I did rx D for a while and I try to get sun daily. The levels are up now and I do feel a little better, but it hasn't "cured" me.
deleted_user
deleted_user
yep me to I'm low. an I take 1000iu a day
deleted_user
deleted_user
My vitamin D level was 18. Took some vitamin's for 3 months and my level went to 23. Doc said that was fine. never checked it again
deleted_user
deleted_user
My doctor checked my Vitamin D levels and I was barely registering on the scale. I take 50,000iu every week. I didn't know that this has anything to do with fibro. Interesting.
CarrieinSK
CarrieinSK
I have severe vitamin D deficiency...unfortunately, I can't take my RX of 50,000 iu's as my body goes into major charlie horses, cramps etc. all over my body, all day long. It was TERRIBLE! I tried taking potassium, magnesium and calcium along with it, but no luck. Even a small dose of liquid d (300) makes me start to get charlie horses. I am allergic to the sun which does NOT help. sigh.
beege
beege
I had very low vit.D last winter into early spring. Took precripton for it for several months then tested went up. So i take 2,000 mg per day. Resently tested and was a good level. Beege
parrothd76
parrothd76
I'm also low-my level was 28. I take 10,000 mg a day. I'm also low on B12 and take monthly B12 injections