Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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LiberaMe 11/14/2011

Over the summer, my doctor discovered that I have a MAJOR Vitamin D deficiency in addition to FM. Last year, another FM patient friend of mine got the EXACT same news--coincidence, or something more? I haven't started researching this connection yet, but I am wondering if anyone here as been told the same?

My physician gave me three 50,000mg capsules of Vitamin D to take, once a week. I still need to go back and see if my body absorbed it at all. The friend with the same diagnosis said that he saw NO change with the capsules, and now he has to go for injections otherwise his body simply won't absorb/process/whatever the Vitamin D.

Anyone else experiencing this? I thought I was crazy, because when I got to Colorado last fall I would have sworn I felt better going out in the sunshine here (which is pretty hardcore being a mile high!), but now I think it's connected to the deficiency. My doctor said she's never seen anyone with lower Vitamin D levels--ever.

Thank you for your feedback!

MAGICpill 11/14/2011

In the winter I had low Vit D and I blame that mostly from not getting enough sun and also I quit taking my calcium with vit D.
This past summer and even today I stand in the sun 10mins a day or more in the summer. I also started taking my calcium with Vit again.
Just had a blood test and everything was good. no low vit d.

deleted_user 11/14/2011

I have the same issue! I found about the low vit D before I was diagnosed Fibro. I have been taking 50,000 units of vit D a week (for over a year) and now adding 2,000 a day and I am still low. I am dealing with 2 different doctors on the issue, so it's tough for me to see if anything is linked. I would love to hear if you hear any connections...its all very interesting...

Jonsparky 11/14/2011

I just take 5,000 ui a day of D3. My numbers were originally 27 now it is stable at 70. Are you in the US or UK? I buy it at Costo for $10, it is a large bottle.

deleted_user 11/14/2011

I take vit. d prescription - once every other week. Haasn't made any difference fibro-wise.

PeaceN2You 11/15/2011

I was very low as well but 5000 iu daily for several months got it up and keeps it stable.

It did make a noticeable difference in my level of pain when I got it up in the normal range.

CajunTiger 11/15/2011

Yep, I was low at 27 a few months ago....I take liquid D3 each day, as it is better absorbed. The low levels can make the fatigue awful.

HUGS from down south :)

RaeFx 11/15/2011

I was dx with low D before my FM dx...my level was at 4. My doc was astonished.

From what I have read, I believe there is a connection.

deleted_user 11/15/2011

I tested low too about 4 weeks ago. I am currently on prescription of 50,000 for 2 more weeks and then will be retested.

mynameisD 11/15/2011

I take 6,000 IU of Vitamin D3 everyday. It has made a world of difference in my life

LiberaMe 11/15/2011

Wow, it's way too much of a coincidence that so many of us have this connection! Thank you all for your replies. I'm going back to my doctor empowered to do liquid Vitamin D, injections, whatever I need to possibly feel better.

deleted_user 11/15/2011

I havnt been diagnosed yet , i was told i was vit d defficient as well just the other day. Interesting though

deleted_user 11/15/2011

I am experiencing the same with my Vitamin D levels. One of my specialist looked at my list of meds and said "there is only one thing your taking that has me worried." And to my complete suprise he said the prilosec? Well he said have you been taking this for a long time? Which I said yes, a year or more. And he stated you should only take this for 4 to 6 weeks, and No longer. This is going to cause a problem with being able to absorb my nutrients and vitamins.
News to me...I quit taking it as soon as he told me that. I also thought I was going crazy with a vitamin D deficiency, I work outside. All day everyday, for the past 4 years.

Hope you find some of this babble helpful, lol. Wish you luck!

deleted_user 11/16/2011

I just got my D levels checked and I too have low D levels. I have been taking only 4000 mg a day for the last month and still have low levels. A few years ago I was prescribed 50,000 mg once a week for 3 wks, and I don't remember if it helped or not with the pain. It was before I was officially diagnosed with fibromyalgia. I think I'll bump it up to 6000 mg a day and see if it helps. There must be a connection...thanks all for sharing!

Wonderbaby 11/16/2011

I believe Vitamin D is just he tip of the iceberg and that many of us suffer from a malabsorption problem in general.

deleted_user 11/16/2011

Good point Wonderbaby. I know for sure that I have malabsorption problems because I had a gastric bypass surgery in 2004. I've always thought it was that surgery that triggered my fibro. Hmmmmm.

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