May of us have underlying issues that can be associated with Fibromyalgia. I have DDD and severe OA too. Some people have RA, Lupus or Sjogrens. The list is pretty broad.

Your doctor should order a complete blood panel including Thyroid. Be sure that you tell them all of your symptoms at the risk of sounding like a hypochondriac. They can't help you if you hold back information.

I'm sorry that you are dealing with additional symptoms. I hope that your doctor will listen and be able to diagnose the issue. Take care.

That rash is a concern. I think it does sound like Lyme. And, as Fantod says, you can have both. Sometimes, I think that we might be some of the legions of 'canaries in the coal mine', being more sensitive to many environmental and experiential stresses that finally bring us down.

I had a friend years ago who had chemical sensitivities who finally died. Who knows what kinds of things are in our food, air, water at this point in time. We are complicated creatures and there are many places where things can go wrong in our bodies.

Best wishes and hopes for an improvement in your condition and a correct diagnosis.

I had the same symptoms and they were greatly improved with cutting out wheat. Hope you get answers soon.

Oh and cutting sugar helped enormously

Yes as for the thyroid, I do have hashimotos & an enlarged thyroid, but for some reason, the synthroid makes the pain even worse. But I see my endocrinologist next wk. The visit w my pcp was disappointing. He attributed some of the new symptoms to fibro & has me stopping one of my meds to see if that helps, but I know it's not that. If nothing changes in 2 wks he suggested another brain scan. I had one in the summer, but w these new symptoms it's prob a good idea. I just don't think he even knows what to do. I told him I didn't want any new meds, yet he handed me a script for a sleeping pill/antidepressant when I said I'm having trouble sleeping. Very frustrating! I'm not gonna fill it anyway. I also asked for another Lyme test, even tho they're unreliable, it's worth a shot. I think I should prob try a neurologist or rheumatologist again, not sure which one would be better.
Thanks for the advice I appreciate it all & hope I'll have some answers soon.

Hi, I'm very interested in the Lyme disease myself. I seen a video of a Doctor that tested all his Fibromyalgia and MS patients for Lyme and 80% of them tested positive. Make sure you get your test done from IGENEX LAB, They are the only one that does the thorough testing. I have an appointment with my GP on the 6th and I plan on asking him about it. Good luck, and gentle hugs.

I have been told to ask for the Western Blot Lyme test. I asked for it, but not sure that is what I got.

Hey, Lanna. Out of 20 years of FM (coexisting with my epilepsy and acid reflux)....


Definitely take the advice from all of the above, about getting more testing and not holding back. It's vital the docs know everything, and that you document and journal things. Photograph rashes, for example. (Done that, too.) Sometimes it helps them tos ee how it progresses as much as to see what it is at the moment.

As for Lyme: A great number of people are infected with tick-carried diseases that go nowhere, lead to nothing, and the data on Lyme-FM is, from a hard-core nerd's POV (mine), suspect at best. Most people who push a "oh most FMers have this" are usually also pushing their own miracle cure or treatment or (fill in blank snake oil routine, which is sometimes that they want attention and credit in a publish-perish world). Whether they say Lyme, EBV or whatever. If repeated bloodwork continues to show negative, and uses more than one kind of assay, you can relax about the virus in question.

The truth is, diseases can also take time to *develop* a recognizable set of symptoms *and* signs. (Symptoms: what we experience. Signs: What they can find on tests or scans.) So you could have something other than FM, or in addition o FM, and it would probably be smart to keep your mind open, and to let the docs know your mind is open, okay? The second they decide you dx'd yourself off the internet or Dr Oz, they shut down.

Good luck, and keep us posted, okay?