Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Doctor Visit and more blood work

AngelaJo
AngelaJo

My dr spent over an hour with me. They tested to see if i have mono yet again i can sleep 10 to 12 hours and still feel like i never went to sleep. I struggle to stay awake even after my coffee. They are also testing for auto immune deficiency and said that the rhuatologist next week will do the lupus test and other tests like that. I am so nervous i just want to know whats wrong with me. Why am i so tired? Why do i hurt so bad i can barely walk or get out of bed? My dr ssaid this is more than just fibro or chronic fatigue. Also added liptor on top of my zetia for cholesterol and added zantac on top of my nexium. See if both of those help me more. They did catch my palpitations on my heart monitor so thats good! My dr said they called and consulted with her when they found that they THOUGHT i had had a heart attack and major blockage. She said she told them go ahead with the angiogram and if needed angioplasty. She said she waited by the phone until i got out. I havent been feeling depressed but today i am and im so overwhelmed with my health! At least my Neurologist refilled my oxycodone before i ran out this time. My DBT group was cancelled today im teh only one that did not call in sick. 

AutumnSong
AutumnSong
Angela I know how exhausting physically and mentally it is to have all these doctors and tests. Just try to keep your eye on the end result. Soon you will have the answers you so desperately need and can do whatever needs to be done to get better. My heart goes out to you and I pray that it isn't something that cannot be fixed. But even if you have something that you will need treatment for long term there are amazing treatments now days. Take care and know that I am thinking about you.
Fantod
Fantod
Angela, I can certainly understand how overwhelming all of this medical stuff is right now. As hard as it might be, try not to worry about it because without any answers right now that gets you nowhere. It could be a matter of adjusting some meds and making a couple of simple changes.

Take it one day at a time. Take care of yourself and let things work themselves out. Getting yourself worked up won't help. You know someone is usually around here if you need support. And, BTW you've done a great job asking if you are having a hard time lately - Bravo! Hugs!
lilmissy7
lilmissy7
Angela you are in my thoughts and prayers.
(((((((hugs)))))))
twinmomab
twinmomab
I know it gets overwhelming and stressful but hang in there. I'm praying for you, and I'm hoping for no more medical concerns.
southwind
southwind
I am the same exact way and was diagnosed with idiopathic hypersomnia in 2000. I do not have enough R.E.M. Sleep so always tired. After my only child was born in 2001 it became much worse and I developed fibromyalgia. By 2002 I filed for disability and was eventually approved. It's hard to accept that I will never feel normal again. I really hope this helps!
AngelaJo
AngelaJo
Thank you everyone. I have chronic fatigue but im never as bad as i been lately. I slept a solid 11 hours only waking up once at 5am for about 10 mins from pain took a pain pill and went back to sleep until 9. This is not normal, not even for me. I am so tired right now i just feel like curling up and crying. Its only 630pm. I barely get anything done anymore im too tired. When i was gone all day yesterday with my parents 80 percent of the time i was sitting in the car dozing while they went in places. My dr has only been seeing me for going on a year but said shes never seem me look so exhasuted not even when i had my mental break down. And at that point i had been awake 8 days. After i get up after 10 t0 12 hours (dont expect me ever up beffore that right now!) i could still easily go back to sleep. I am trying to force myself to stay awake. Its so hard i just want to cry :(
AutumnSong
AutumnSong
Angela hang in there things will get better. I am wondering it you might have narcolepsy. People with it feel sudden and complete exhaustion that is not helped by sleeping. Just a guess. I am thinking of you and praying that the doctors will soon find and fix this. In the meantime just keep doing what you need to do. Sleep more if needed and don't judge or worry that you aren't doing much. Right now you are doing what you are supposed to be doing taking care of you.
beclinkay
beclinkay
Angela, I'm glad these doctors are finally listening and really trying to help you. I truly believe they are going to get to the bottom of it. You just take care of yourself. I'm glad that you continue to seek out help. Blessings to you.
BlueSky
BlueSky
Angela, sorry you're so tired lately and hurt so bad. I hope the doctors get to the bottom of this and can get you on the track to feeling better.
AngelaJo
AngelaJo
Thanks everyone, all your responses brought (happy) tears to my eyes that people really care how im doing and how i feel! I am not used to much of that although my moms been much better since my heart scare. Really shook her up. I am going to try to sleep now my legs hurt horribly almost wondering if its cus im back on a statin (lipitor) i couldnt take simvistatin or pravastatin for that reason. Hope you all sleep well and your words mean so much to me, your not just words on a screen to me your true friends who care!
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