Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
scootermom
I realize that the title to this post is strange, but oh my gosh, my clothes hurt. When I wear them, of course! Does this happen to you? Have any of you found a solution to this problem?
My main problem is my bra, so now I wear a soft sports bra, or a cami withbuilt in support. The other thing I am very sensitive to is seams, around the waist area, or side seams. I do love fashion, so the challenge is looking put together, while wearing comfort clothes! I am also on a budget, and can't afford to buy cashmere underwear, for example. With limited energy for shopping, I am at a loss sometimes. I live in Canada, so the clothing must be warm, and I use layers for temperature control. Another thing, I just can't seem to regulate my body temperature, is that a Fibro thing?
What clothing have you found to be comfortable and *stylish* enough to feel good in?
My main problem is my bra, so now I wear a soft sports bra, or a cami withbuilt in support. The other thing I am very sensitive to is seams, around the waist area, or side seams. I do love fashion, so the challenge is looking put together, while wearing comfort clothes! I am also on a budget, and can't afford to buy cashmere underwear, for example. With limited energy for shopping, I am at a loss sometimes. I live in Canada, so the clothing must be warm, and I use layers for temperature control. Another thing, I just can't seem to regulate my body temperature, is that a Fibro thing?
What clothing have you found to be comfortable and *stylish* enough to feel good in?
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Not much to be done about it. I just adjust my wardrobe accordingly as it comes and goes. I've seen other comments that Gabapentin (prescription med) may help. I take Gabapentin and I don't notice any difference.
Regulating body temp is also a FMS thing. Again, you just kind of half to roll with it and figure out what works for you.
Take care.
Yes, I love the trend of stretch fabrics, and have found some leggings for fall/winter. Once the pain, allodynia, is present, Nothing seems to help, and I have to change into pajamas for the remainder of the day.
No bras, belts, ties, watches, rings or other types of jewelry for that matter. I haven't worn a pain of dress shoes in at least 4 years either.
What I wear most of the year is loose fitting gym shorts & t's. When it does get cold enough I add sweatpants & sweatshirts. The only shoes I wear anymore are tennis shoes & Crocs. Most of the time without socks as it hurts to put them on. Since I live by myself & rarely have company I don't have to worry about dressing up.
I also have a big, big problem with my body temperature. Back in the 1980's I had fever episodes - the first time I ran a fever for 75 straight days & then a couple of years later I had a fever for 60 straight days. All the doctors could tell me at that time was I had a fever of unknown origin. So instead of being an UFO, I was a FUO.
Had an acupuncturist tell me back in 2010 that my internal thermostat was messed up so that explains a lot to me. Have trouble with hot & heat. Can't take hot showers or drink hot beverages anymore.
BTW, the way I find that Haband is a good source for loose fitting inexpensive clothing. Not the kind you would wear on the Red Carpet but who cares anymore. At least they are clothes & do cover my body. LOL
Sorry but my weird brain is in overdrive right now. Just got my flu shot so that may explain things.
Shirts with tags are a real pain, so I don't just cut the tags out and leave a rough edge. I use my seam ripper tool from my sewing box and pick out ALL the stitches, leaving nothing to irritate my neck. If you don't have one of these tools, tiny manicure scissors will work, along with tweezers.
Take care!
Many of us with fibromyalgia also experience allodynia. Here is a brief article about it:
By Adrienne Dellwo, Fibromyalgia & Chronic Fatigue Expert
Updated May 23, 2014.
Definition: Allodynia is pain, generally on the skin, caused by something that wouldn't normally cause pain. Many people with fibromyalgia report having this symptom. Examples of allodynia are pain caused by mild pressure from clothing, a light touch, gentle massage, or sheets rubbing against the skin.
Allodynia is believed to be a hypersensitive reaction that may result from central sensitization, which is associated with fibromyalgia. The pain signals originate with specialized nerves, called nociceptors, that sense information about things like temperature and painful stimuli right from the skin.
During the cold weather season I wear a pair of soft thermals under my clothing. I don't like clothing that is hard or stiff. Pain rubs help me when my skin gets like that.
I do have big problems with temperature regulation. I have always said my thermostat is broken.
I hope you can get some relief and some useful suggestions.
I'm all about trying to stay as comfortable as possible, so fashion really doesn't factor into my life at all. I tend to stick with soft, loose, tagless, cotton items, as much as possible. Since I don't work, and rarely go anywhere, I pretty much live in men's boxers (with the waistband rolled twice, so the puckered crinkly edge doesn't touch my skin), t-shirts, and sports bras during the summer, and yoga pants with sports bras, t-shirts and sweatshirts during the winter. When I have an appointment or am going out to do a quick errand, I'll put on jeans and a top and wear a "real" bra, but I stay in all of that for as short a time as possible, putting it on right before I leave, and taking it off as soon as I get back.
A few years ago, I did have a doctor teach me to always wear my socks inside-out. This way, you don't really feel the seams, and the much smoother side of the fabric is against your feet. She said it's important for us to try to "quiet" our bodies as much as possible, and that every little bit, and thing we do, adds up and makes a difference. I've been wearing my socks this way ever since, and my feet, and the rest of me, appreciate it.
As for regulating body temperature? That one I haven't managed to improve for myself.