Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Can someone help me?

Timeoutplease
Timeoutplease

hi I am brand new to this forum. I was just diagnosed with fibromyalgia just last year. I am in chronic pain, migraines- needing trigger point injections every two months on a scheduled basis, eyes hurt, difficulty in walking, etc. I'm sure I don't need to tell you all of my symptoms bc you all have felt them. My scenario is this- this past Friday after I got off of work- I went to the grocery store to pick up a few items before going home. As I am walking into the store- I got the worst trigger point knot in my foot and could not move. It was the worst pain that I had felt yet to date- and I have been in some pain. Does anyone else have this happen to them? I want to know that this is normal- I have been really upset this weekend bc I don't want this to become the new norm for me. After standing hunched over the grocery cart- taking my shoe off and trying to work out the knot (myofascial) and letting time go by it finally waned enough for me to limp around to get my four items and left. Please tell me that I'm not alone in this? This has really brought me down. 


Thank you for your time

beclinkay
beclinkay
Oh, wow....I'm so sorry that you had this happen. And in a grocery store too yet. I don't get the type of pain that you are taking about. Mine is mostly a constant ache everywhere, like I've got the flu. But there are all different types of pain, and I'm sure there are people here who get those injections. I've never had one. Please feel free to come here and vent, or whatever. We all need a pal.
sonyacon
sonyacon
Welcome to the forum. I think we all here can relate to the feelings behind your screen-name. A time-out function on fibro would be really great.

Fibro can manifest quite differently in people, so like Ida I don't experience that particular symptom in my foot. That doesn't change the fact that it's an awful thing to have to deal with in the middle of the parking lot when you have to get yourself home.

If it helps anything; for me, pretty much all the moments of extreme, far worse than ordinary fibro pain did not linger to become a "new normal." The occasional, terrible extremes remain occasional for me. I hope the same for you.

Welcome again, and this is the right place to talk the fears and frustrations and angers of dealing with fibro. While we all experience it a little differently, we all know what pain can do to a person, and how hard it can be to get understanding or support from our surroundings. Feel free to vent here.
Fantod
Fantod
Welcome to the group!
AutumnSong
AutumnSong
I have severe pain in my feet at times. I describe it as a mix of something trying to pull my muscles out of my body and a red hot poker being shoved through my foot very slowly. I soak my feet in warm water to help the pain. Using supportive shoes and arch supports as well as memory foam pads helps too. I buy wide shoes even though I don't have wide feet. That gives me room for the arches and pads. I hope this helps.
Timeoutplease
Timeoutplease
Thank you all so much!!! It's nice to be supported! You don't know how much that means to me! @sonyacon I hope you are right and this is not a. New norm! If it is then I will surely try to get used to it and use your helpful hints AutumnSong. I
Idajoy- I have constant pain and pins and needles in my extremities all the time- that's why this shocked me. It was something new. And acared me.

To everyone- thank you for your kindness- your welcoming me to the group and for helping me get through this moment. I am sorry that all of you have to endure this pain- disease and all of the symptoms that come with them. But I'm thankful that now I don't feel all alone in my fighting! God bless
MustangMomma
MustangMomma
Welcome to the group. Something similar happened to me twice in the past 3 months, a very intense sharp shooting pains like I was being stabbed in my knees where I couldn't walk or even stand. Luckily I was at home both times, and both times it happened on those "off days" where I was feeling extra achy and tired. It only lasted 5 minutes but was quite scary. I burst into tears which were caused equally by the intensity of the pain but also fear. It must've been awful being outside when this happened to you.
Timeoutplease
Timeoutplease
Mustang Momma- it really was scary. I didn't know what to do to help myself and it that's what scared me the most. I'm sorry that you have to deal with these pains too!
bubsmom
bubsmom
I found grocery stores and Costco in particular were murder on my FM. The concrete floors are not kind. You probably hate to hear this but use their electric carts. Better than falling. If your feet are giving you that much trouble I would think the next stop should be a podiatrist. Your feet may need some extra love like treatment for faciatis and orthotics to balance your gait. For what it's worth my feet started going to sleep. I now see a PT who says my hips are really tight. Hang in there and carry on.
jptexas
jptexas
Welcome, you are not alone. There are soooo many people out there suffering and you can find support here. Some people like me, are still having to work, but have learned, over time, to manage within my limitations. I have actually stopped shopping and fortunately live in an area I get multiple choices for grocery delivery including amazon prime which is spectacular! You can even buy underwear and parts for your wash machine! I live alone so, I've had to learn to manage by making things as simple and easy as possible. It's a process. However, I also have multiple health issues like heart condition not related to fibro. I also work from home.
Over and over again, hitting the wall so many times.... the key to me, is managing stress. As I have been told by those who came before me. You've got to learn to key in to your body intensely and listen to what it needs.
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