Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
fibro at this point is wearing me out..dealing with a massive bladder problem..the pain and the urge to go is getting out of hand..even coughing gets the bowels to open up..even a trip to the shopping centers you need to know where the loo"s are.i have resorted at times to use a pull up.that all to me seems a little degrading.but then i think what can i do...i suffer bad from c.f.s..on waking in the morning i feel so done..sometimes i think if there was a jetty outside the front door i would just keep walking..after been so active..working 55hrs a week i gave it away last year..the body said no more..not on any meds as i am waiting for the hospital..any sure fire over the counter meds that will help any of this..need a little help and some answers..thanks all
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We're all troubled.WSo, to remind ourselves we're not at rock bottom (this is a reverse optimism thing I learned as a kid):We are not living on the island of Krakatoa when the volcano goes boom!Yeah, okay, that sucks.***Toay in 1942, Pierre Laval announced that the way to free France was for Germany to win WW2. Pierre did not win a lot of friends. When the war ended, quite quickly he was tried...
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Another day, another ouchie?My bruised achilles tendon (don't ask) makes my foot numb. Wonky on meds, whacked it.Now, as to fibro:A lot of reports are going around some parts of social media that fibro (and dang near anything else) are caused by post-Covid, post-flu, post-vaccinations, post-pick-something.1. Your risk of death or serious complications beyond "ow, that shot hurt!" are typically...
So sorry you are suffering so much. I too have i.b.s. and bladder issues. Actually, I was diagnosed with interstitial cystitis last year and have been treated. I used to get up 20 times a night literally....it was awful. When ibs is bad, so is i.c.
What you need to know: i.c. and i.b.s. go together and are often co-existing conditions with fibromyalgia. Make sure you tell the doctors exactly what is going on and tell the "uninformed" that ibs and i.c. are commonalities, so please do an ultrasound on your bladder. They can at least see if you have any cysts on your bladder. I was put out and had cytoscopy done to look inside the bladder to find hunner's lesions. I am 49 years old but my body is like an 80 year old. I have aged a lot due to stress. Good on you for taking time out to take care of yourself.
Make sure you get proper medical attention. There are plenty of over the counter bladder solutions. I am sorry I have not tried them as I get a bladder distention to calme down the bladder every year and it solves most of my problems. However, right now after a bad flare, if I am not 1 minute from bathroom, well, oopsy...so yea, super frustrating. I had a huge bout of ibs-d over the holidays. I used pepto and immodium until I could get to doctor and then dulcolax for the wild swing the other way with constipation. I am now on xifaxan with extra amounts of probiotics which you will need for ibs. Read up on the ones that are best....some good ones that are inexpensive like nature's bounty. It resolved my gut issues after several weeks.
I wish you good luck and I literally, "feel for you" sister!!!
Take care, JP
p.s. I used to be super active too, sailing, hiking every weekend, playing golf a while back. I am going to physical therapy to try to resume some of these :)
I'm sorry that this is distressing you so much. Feel better and take care.