Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
CaptainFibro
My doctor has already said he is writing me a letter recommending that I do so and I didn't want to do it but I think I have to now. Last week I only showed up to work twice and this week out of 5 work days, I showed up 0. That's right ZERO. Outside looking in, I'm sure it looks ridiculous! I've not told anyone outside my immediate family because I don't want them to know. I told my father and even though I expected ridicule (under the guise of "helpful" advice), he was actually compassionate and supportive (I'll mark that down in my calendar).
My doctor suggested that I also see a psych doc to get a letter from them as well but I don't have health insurance and I seriously doubt I could even afford one visit. My father said I should consider starting to go to the health department for the psych doc and my reg doc to save money. I like my current doc but I'm pretty much broke and don't see how I could afford to keep seeing him after my next visit.
I am going to get more information from my doctor next time I see him but wanted to ask you guys since some one you have either been through it already or know someone who has.
Do I need to file myself or use someone like Allsup?
Allsup and others say that they don't charge unless you win and get on disability but I can't find anywhere what they will charge if you DO get on it.
Do I have to get copies of my medical records to send to them or just sign something giving them permission to get them from my doc?
I had other questions but I'm so scatterbrained right now, I don't remember them
My doctor suggested that I also see a psych doc to get a letter from them as well but I don't have health insurance and I seriously doubt I could even afford one visit. My father said I should consider starting to go to the health department for the psych doc and my reg doc to save money. I like my current doc but I'm pretty much broke and don't see how I could afford to keep seeing him after my next visit.
I am going to get more information from my doctor next time I see him but wanted to ask you guys since some one you have either been through it already or know someone who has.
Do I need to file myself or use someone like Allsup?
Allsup and others say that they don't charge unless you win and get on disability but I can't find anywhere what they will charge if you DO get on it.
Do I have to get copies of my medical records to send to them or just sign something giving them permission to get them from my doc?
I had other questions but I'm so scatterbrained right now, I don't remember them
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It's great that you have a doctor to support you but to win your case you need to have a lot of medical records to back up your claim. Is your doc a PCP or Rhuemy? I had records from more than one PCP, a Rhuematologist and a Neurologist. I also had records from pain clinics.
I went out on Short Term Disability from work and it turned into LTD. My LTD insurance carrier told me I had to file for SSD.
Generally, I found that an attorney will not take your case until you get denied twice. The next step after that is a hearing before an administrative law judge that just hears SSD cases. That is when you will need an attorney.
It's important that when you initially file that you have all your ducks in a row and are very careful about your wording on the initial application. You can file on the internet, in person, or by mail.
If you go to the SSD office and file in person they will interview you and take note that you were able to drive to the office and even sit through the interview. Those little things will make a big difference. If you file by mail you can include supporting medical records that you find important and they will become part of your file. If you go in person or file on the internet they will not accept any records from you because they will ask your doctor directly for them. Giving them permission to obtain your records is part of the application process.
Allsup are not attorneys they are advocates. If you won your case but the judge decided to not give you back pay Allsup could still come after you for their payment. Attornies are different, in that they are bound by laws of your state and only get paid if you win and are paid directly by SSD.
My judge randomly changed my disability date to 2 yrs after I became disabled to a date that I had a medical procedure done effectively cheating me out of most of my back pay and making me wait to be eligible for Medicare.
I did a lot of studying on the subject before filing. disabilitysecrets.com was very helpful and so was the CFIDS Association for information on how to win when you have an invisible disability. I also listened carefully to others who had gone through the process and what their experience was in both winning and losing.
My doc is a PCP. When I went to a Rhuemy, he "doesn't deal with stuff like that" and said just said if it gets worse to go ahead and come back or better yet just call my PCP and he'll handle it. My PCP has treated others for FM in the past so I just stuck with him.
Thanks for your advice. I will check out the website you listed.
I believe there are others on this site that have used Allsup- so hopefully you can get info from others.
It does take a long time the whole process - when I received it in 2007 it took 2 years and I hear it can take even longer now. Also, it wont look so good to a judge if you are not seeing a Dr consistently - so I would look into getting help with medical costs. Medicaid or other services your state or county have. Plus, you have an illness you need insurance to be able to get medical care for your fibro and whatever else life may throw at you. With no income you should be able to qualify for something.
You have to get copies of your medical records
You need an income statement
You need a copy of your social security payment statement.
You can go through allsup, but I would go through a disability lawyer. They both get paid when you do, but from all that I have heard from others, a lawyer has more incentive to win for you. Their clientele comes from word of mouth, while allsup gets referrals from gvt agencies and are often overwhelmed.
The amount of payment is a percentage of what you are awarded
I see now that with your other diagnosis that the psyce eval may be helpful for you and your case.
On getting your medical records, I'll just say that I spent a lot of money on getting my medical records as doctors charge a lot for this service, especially if your chart has not been entered into a computer. As it turns out it was a big waste of money because my attorney asked for my records as well as SSD. My attorney informed me that they cannot accept records from the individual because they could be incomplete or altered.
I didn't know this at the beginning of the process. But I also was enlightened to find out what some doctors wrote in my chart.
I don't think you need to go see other doctors. There is no reason why your PCP can't handle everything although a Rhuemy is considered still the specialist for FM by the courts so as it get's closer for you in a year or so you may try to find a good one. My Rhuemy took the time to fill out a Functional Capacity Evaluation form me the day before the hearing and since it was so recent it carried a lot of weight.
I don't want to go to a different doctor but since I'm not going to have any money from working, I don't think that I will be able to afford to keep seeing my current one!!
I will definitely be looking into getting a rep and asking for a quote on what their cut will be. My father said he is willing to try to help me and said he helped my uncle and grandmother fill out theirs (which I didn't know).
Good luck. I hope you win your case.
I used an attorney after two denials. Turns out that what I wrote on my original application on-line was finally proved by the medical records, the tests, the reviews, and after the disability was approved, I still had to do the psychological evaluation, the disability assessment, and it is a lot of paperwork.
Definitely worth your time to keep a daily journal.
Best wishes!!
Call your local hospital and United Way and see what they can do to help you. The hospital should have reduced fee and/or no fee clinics. United Way may be able to help you with that as well in addition to seeing psych too.
Good luck and take care.