Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Sorry I haven't been checking in with the group. Been having family problems. So I have questions. I went to a new neurologist. He tested me for lupus and it came back negative. He wants to do another EMG on my lower right leg because he has concerns. I've also been tested for 'S. That came back negative. Tested for lyme, thyroid that came back negative. I still have my good days and day with what my primary physician said I have fibromyalgia. Don't you have to have a primary diagnosis and then fibromyalgia is secondary? So what else can I possibly have?
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I'm alive, I'm sleeping like a rock, and for some reason I wanted cherry juice so that seems to be helping. (??? Weirdo that I am.)***Infamous therapies over history:1. The Attic. The madwoman in the attic is a motif in literature going waaaaaay back: the nutty female relative is locked in the attic. (See: Jane Eyre by Charlotte Bronte for a grotesquely racist version of it, and Charlotte Perkins...
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We're all troubled.WSo, to remind ourselves we're not at rock bottom (this is a reverse optimism thing I learned as a kid):We are not living on the island of Krakatoa when the volcano goes boom!Yeah, okay, that sucks.***Toay in 1942, Pierre Laval announced that the way to free France was for Germany to win WW2. Pierre did not win a lot of friends. When the war ended, quite quickly he was tried...
In FM, it's a primary dx for me. In others, secondary or co-morbid with RA, OA, MS, lupus, (long long long list), and many of the symptoms are similar or identical. It's why they rule out so many other things before going to the FM dx as the primary or only dx.
Consider it this way. FIbro's main symptom is "widespread pain". That also applies to about 500 other things in the diagnostic manual. So until they've ruled out the rest of the possible causes that have better names and entries in th emanual? FM tends to be the "last resort" dx of good docs, and the first resort for lazy ones.
Never fear to ask your doctors anything, btw. If they're lazy or ignorant, it's a good way to find out, and if they're not, they're much better at explaining than I am!