Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

curlykraut
I have posted recently about my job issues...not having one, and I am hoping to find out if there are any others with fibromyalgia that do not work, or struggle financially that are single? I feel so worthless and I want to be "normal " so badly! If you do work what kind of work do you do? I feel unable to do anything anymore. I am driving for Uber, but only once a week for 4 hours, it does not pay the bills. I don't want to lose my house and my 10 year old daughter. Feeling really hopeless lately. Thank you for listening. J
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Wow, you're 31! I am 42 and have had this for 7 years. I am so sorry you are a widow. How hard this must be for you. So far I have medicaid, so that is good, and food stamps. How long did it take you to get ssi disability? Thanks j
Thanks for your reply. My dad did help me out immensely, but he passed away in January, I miss him so much! I feel like I have no one and nothing to fall back on, it's all so hard. j
It took me about 3 years to get SSDI . I was married then with a child and we struggled financially big time on one income. It was scary and stressful.
It doesnt matter if you can get a job doing any of these things, they just have to exist. Do you need help with your activities of daily living? Who helps you care for yoru daughter ? Have you discussed these things with your dr ? Has he written them down in your medical records?
All income that you receive, earned or unearned, will be deducted from $733 a month SSI, if you are approved. The soonest that you can be approved is the month after you file your SSI application. SSA will also want to see a copy of yor bank statements. If your have more than $2,000 in resources, you aren't eligible for SSI. If you are in danger of being homeless and you have to request a hearing, submitting a Dire Need Request may move your hearing up a little, but not a lot. It usually taken 12-24 months to be scheduled for a hearing. To receive an answer on your initial application it can take at the least 60 days or up to a year. It depends on how far behind your lical office is. You can also submit a Dire Need Request with your initial application, but that doesn't mean that it will speed things up. It is best to submit proof of eviction, utility cut off notices, ect with your Dire Need Request.
Work which exists in the national economy.-
https://www.ssa.gov/OP_Home/cfr20/404/404-1566.htm
Evaluation of Fibromyalgia-
https://www.ssa.gov/OP_Home/rulings/di/01/SSR2012-02-di-01.html
Thanks, 3 years...I'll be homeless by then. Such an unfair system, in my opinion.j
3 years just seems terrible, but it is typical I am hearing. So discouraging but better to know for sure. Thank you for replying. j
How does anyone in our condition have the ability to do all the necessary things? It seems like if I could do that I could work...ridiculous. Sorry I am just frustrated, seems like the system works against us, not for us. Thank you for all the information, I will look it up. j
Have you explored HUD, and other agencies?
I haven't worked at my regular job since 1999; did go through a state vocational rehab program (I suggest that, and it also looks good later, if you have to apply for disability). I couldn't find something I could do, due to severe physical limitations.
I was a renter, so I got on the HUD waiting list and got a wonderful little apartment and I paid 30% of my income (and income was decreased by medical type bills).
If I had been a homeowner, I would have had to rent out some rooms in my house to make ends meet, or sell, and get on the HUD waiting list, barring meeting Prince Charming.
Good luck!
I think the renting out of a room idea is definitely something to explore! Thank you for the idea! What a prospect...hope.
Julie
Thanks for your supportive vibes, need all I can do.
Julie
Rental Help: Virginia-
http://portal.hud.gov/hudportal/HUD?src=/states/virginia/renting