Eye Cancers (Retinoblastomas) Support Group

Retinoblastoma is a cancer of the retina. Development of this tumor is initiated by mutations that inactivate both copies of the RB1 gene, which codes for the retinoblastoma protein. Until recently the only treatment was to remove the affected eyeball before the cancer spread. Chemotherapy is the treatment of choice for most unilateral cases.

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  • mustanggranny

    left eye blindness

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    I posted in the brain cancer support group.....wasnt aware of this group. My husband has to have mir in. November to see if his radiation treatments help stop the growth of a tumor on the optic nerve.He had surgery in 2008 but his vision got worst last march. Its in his left eye. The doc calls it a triton tumor. Its very rare so she says. Anyone familiar with this type of tumor?
  • deleted_user

    New To Group/ Nevus

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    Hi All,I am new to this group...I hope this message finds everyone in good health.Recently I went to see a Retina specialist who noted a large, but not terribly raised choroidal nevus on my Retina.The concern is that this growth was not there 4 months ago at my last complete eye exam or any of my previous 4 month eye exams (I have an optic nerve condition that requires monitoring)My current...
  • deleted_user

    Iris melanoma

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    I have pigmentation in my right eye which has spread over a number of years over my eye, I was told this was very rare and had numerous eye docs look at it. I was even asked to go to a medical school for trainee eye docs to study my eye.. Most of he growth was in the first year. My eye was photographed and examined every year for nearly 8/9 years now. After being refered for a second opinion I...
  • deleted_user

    malignant melonoma of the eye

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    In case anyone needs information from someone who has been there I had malignant melanoma of the right eye over 20 years ago. At the time, only 1 person per million would have this ailment. Peter Falk had this as a child that is why he has only one eye, the cure at that time was to remove the entire eye. Drs Shields of Wills Eye Hospital in Philadelphia (husband and wife team) pioneered a new...
  • deleted_user

    Ocular melanoma

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    Hello there,Writing from BC, Canada,,I am writing in regards of info for my dad. He's 74 soon, and has just gone through removal of his left eye because of a "large" tumor in the back of his eye. He was diagnosed with ocular melanoma this month and the quick decision to take the eye was done in hopes of reducing possibility of the cancer spreading . They sent his tumor away for analysis. Which...
  • deleted_user

    Rise funds for research!

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    On Monday, April 16, lace up your sneakers and run the 2012 Boston Marathon for Mass. Eye and Ear! You will bring new hope and healthier future to people everywhere who suffer from debilitating conditions affecting sight, hearing, voice, balance, taste and smell, as well as cancers of the eye, head and neck. Since 2006, Mass. Eye and Ear's marathon team, Team Eye and Ear, has raised over $1.4...
  • deleted_user

    Information on Retinoblastoma

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    Retinoblastoma is the most common type of malignant intraocular tumors found in children. This type occurs in one out of every twelve to twenty thousand children and develops in the retina of the eye. Retinoblastomas may be hereditary or may develop sporadically. The less common hereditary type is usually present at birth and has its onset near one year of age. In both types, the condition is...
  • deleted_user

    Hi

    2
    Hi, my mom had this type of cancer, i'm not sure what specifically she had. But i just want to know more about. All i know is that the kind she had is extremely rare & they couldn't do anything for her.Anyone know anything about it to help me learn more?Thanks- C
  • DJH

    welcome to the community

    0
    we created this community per your request.