Epilepsy & Seizures Support Group
Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...
Hi I am new to this. I have quite a few other diseases/conditions & now it looks like I may have seizures/epilepsy. For about the last 12 months I have been having "blank outs" where I just stop what I am doing & stare vacantly. I get a jolt/shake feeling through my body & then confused about where I am or what I am doing. I have told Dr's & they have not seemed concerned & don't investigate it.
I also do things like I just typed up this with details, didn't click submit & then must have clicked x to close without saving. Hubby said I looked like I had fallen asleep.
Anyway I was ignoring these blank outs as Dr's didn't seem concerned & too much else going on health wise ESP with ms.
Wednesday I was at work & had the worst one ever. I had felt a bit out of it before lunch but after I ate felt fine. I remember about 2pm thinking I am going to take a break soon & get a drink etc. Next thing was a colleague came up to me & started talking, I could hear the voice, see she was talking but not understand anything. I suddenly jerked a lot & asked what she wanted. She said I had been staring at computer then her. She takes over from me when I finish as I am part time & she works the days I don't so we usually tell each other what we are up to workload, I looked at the work on my desk & some was face up, some face down & out of order, on the screen some had been completed & some hadn't. I was totally confused, didn't know what I had done & hadn't. I almost cried. It was 3pm which is my finish time & I don't know where that time went or what I did, It was a very scary feeling.
When I went to stand up I felt like I was out of my body or out of control of it. I struggled to walk as my legs would not move when I told them to. I thought that was ms but I still couldn't put two thoughts together or make sense when I spoke. That night I could not stay awake & kept dozing off all the time. I was totally exhausted.
The next day I got up & it took me forever to get organised to go to physio, I got there & was ok, it is a group for people with ms. We have coffee after in the coffee shop & I was talking to a couple of them about the previous day & they said it sounds like epilepsy. My foot/leg/arm/hands also jerk, numb etc which I thought was ms. One of them has epilepsy & said it is the same as what happens to her. Later as I was chatting to one of the others I (apparently stared blank, ) at her, then I shook myself & went to continue our conversation form a few minutes before. She stopped me & told me what had happened, exchanged a look with the girl opposite me who then said I had just had another seizure & told me what I had done.
This is getting very scary as I don't know its happening & get very confused & it is happening more often. I spoke to Dr who was not concerned. I am seeing my neurologist on 22nd so will ask him about them.
I know you aren't Dr's but does this sound like epilepsy to any of you & what should I do when I go to the neurologist, like ask etc.
Any & all help or advice would be appreciated.
Thanks, Sue
I also do things like I just typed up this with details, didn't click submit & then must have clicked x to close without saving. Hubby said I looked like I had fallen asleep.
Anyway I was ignoring these blank outs as Dr's didn't seem concerned & too much else going on health wise ESP with ms.
Wednesday I was at work & had the worst one ever. I had felt a bit out of it before lunch but after I ate felt fine. I remember about 2pm thinking I am going to take a break soon & get a drink etc. Next thing was a colleague came up to me & started talking, I could hear the voice, see she was talking but not understand anything. I suddenly jerked a lot & asked what she wanted. She said I had been staring at computer then her. She takes over from me when I finish as I am part time & she works the days I don't so we usually tell each other what we are up to workload, I looked at the work on my desk & some was face up, some face down & out of order, on the screen some had been completed & some hadn't. I was totally confused, didn't know what I had done & hadn't. I almost cried. It was 3pm which is my finish time & I don't know where that time went or what I did, It was a very scary feeling.
When I went to stand up I felt like I was out of my body or out of control of it. I struggled to walk as my legs would not move when I told them to. I thought that was ms but I still couldn't put two thoughts together or make sense when I spoke. That night I could not stay awake & kept dozing off all the time. I was totally exhausted.
The next day I got up & it took me forever to get organised to go to physio, I got there & was ok, it is a group for people with ms. We have coffee after in the coffee shop & I was talking to a couple of them about the previous day & they said it sounds like epilepsy. My foot/leg/arm/hands also jerk, numb etc which I thought was ms. One of them has epilepsy & said it is the same as what happens to her. Later as I was chatting to one of the others I (apparently stared blank, ) at her, then I shook myself & went to continue our conversation form a few minutes before. She stopped me & told me what had happened, exchanged a look with the girl opposite me who then said I had just had another seizure & told me what I had done.
This is getting very scary as I don't know its happening & get very confused & it is happening more often. I spoke to Dr who was not concerned. I am seeing my neurologist on 22nd so will ask him about them.
I know you aren't Dr's but does this sound like epilepsy to any of you & what should I do when I go to the neurologist, like ask etc.
Any & all help or advice would be appreciated.
Thanks, Sue
-
My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
He did say that It could be from varying sugar levels - hypoglycemia/diabetes. I get regular tests for diabetes as it is in my family.
It is not easy to get another opinion as then they want all the records tfr'd etc.
Guess its going to be like the ms, long track/wait for any dx. Just going to try not to stress & keep an eye on it.
Thanks again
They found he had left temporal lobe epilepsy.
His seizures are exactly what you are explaining. They are called Petit Mal Seizures or Blankouts. He was diagnosed 3 years ago. The doctors have been messing with his meds and he just recently suffered a Grand Mal and I had to call 911. Don't let this go untreated push your doctors, to run the tests so they can fully diagnose you as being epileptic. Good Luck hope this helps.
I guess I am going to have to wait & see or have something happen when I am at the Dr's. It is just one more thing going on & as usual I am never dx straight away.
I really appreciate the support here esp as I dont seem to be getting straight answers.