Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
hi DS, i have made 3 posts here of which noone reply too. Now dont get me wrong i am not angry what i want each of use to know for the sake of the site and those who join each day. We are all here to teach each other or share our experiences when i have the chance i pop on the site once and a while to see what happenin and to see what i can do to help anyone suffering with Endo.Now i have lots of friends i met here @DS who are know longer here, well sayn dont bother to come online i never ask the reason but from what i see we are all in our own world now come on we are all in pain some worse that some but @lease we can be sincere to the needs of others i cant do it all. i love this site ilearnt alot from ppl here in earlier times, i shared it with many ppl who are sufferers of various deseases but i cant help but feel the coldness which i amount other ppl feel here its a gr8 forum dont jus let it go by like this try to make afriend share show love we see new ppl come and go each day ever stop to ask Y?? come on guys be more compassionate to each other i know some of you see what i mean i spoke to 2friends who told me about the sharing and noone responding i think i needed to share this one after posting 2-3 days ago and no one replyed i said well its time i speak about it. REMEMBER DS ITS NOT ABOUT JANEA IS ABOUT OTHERS WHO COME AND GO so please show love take care
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Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went...
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
1 if ppl don't respond to my post and I am still curious, I reply to myself to get it back to the top of the forum
2 I generally only look 5 deep in the forum because I am on here so much
3 if there is a topic I don't know at all or have no response for, I either do not open the post (Lipton q's for example) or rarely open and respond because it is a popular post.
So you question about the liver I did not open because I know nothing about it. You must have a PhD in endo!!! You are too advanced for us (or just me). :-)
So please forgive us for not knowing. It would be nice to learn together, I agree. There are some posts also (gulp) that scare me and I avoid thinking about the questions...sad but true. I just had a miscarriage and have to have my tubes removed and am somehow supposed to get pregnant after that. I have enough super scary things going on than to think about all of my guts hanging out (giggles)...although no one has posted that as far as I know.
Hope you come back to the board, we need you.
This was specifically in regard to your post but it applies more generally to the entire support group too...It does suck when topics go unresponded to and definitely can scare newer members away. I'm new here myself and despite some of the issues you brought up have met a few friendly folks and got lots of information on endo.
Your post was pretty complicated, about the liver and danazol, and i cant speak for anyone else, but for me, i had nothing to say because i had no advice at all-no offense...i cant do hormonal treatments and dont have any experience with Danazol, and dont know a lot about Danazol, especially the affects on the liver...like falana said, im not sure if its metabolized through the liver either, and i dont feel comfortable commenting on things i have no experience in, or real, concrete knowledge. I also think only a Dr. should answer that question...when you're asking about medication and the liver, thats really serious and you need the to know the facts about that.
Again, I am positive when a post is not answered its not done to be mean or cold.