Dysautonomia Community Group

For all types of Dysautonomia to learn and understand more about it.

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Brain & Nervous System
/ Dysautonomia Support Group

TOS & Dysautonomia anyone?

deleted_user
deleted_user
Does anyone here have Dysautonomia/POTS and TOS-thoracic outlet syndrome? My daughter does and she's severely debiliated just from POTS and now needs Thoracic outlet surgery which involves removing her top rib and a sympathectomy at T3 and T4. We are unsure about this surgery and very concerned if it could make her POTS or TOS pain even worse.

I would appreciate any advice you may have....

Amanda
deleted_user
deleted_user
I have TOS and Dysautonomia...I have had 4 surgeries for TOS and looking at another soon. I was interested if there is some relationship between the two.