Dysautonomia Community Group

Just looking for some support.

Seeking doc preferably Central NJ... but will travel anywhere in NJ/PA/NYC.I am 77. Have had RA 40+ years, Sjogren's,... READ MORE

When I stand for more than a few seconds and my heart starts to race and blood pressure drops, I sweat like crazy, even... READ MORE

I just know I'm going to pass out on the toilet..... Nervous. Talked to the GI doc today, the plan is LOTS of... READ MORE

hello?

I cannot stand the chronic dizziness!!!!!!!!! Anyone have any advice on how to deal with this? Is there any medication... READ MORE

http://bobisdysautonomia.blogspot.com.au/2009/07/my-life-with-bob-ravings-of-one.htmlThis is a great read, a first post... READ MORE

Hi Everyone, I just wanted to stop by and say hello. I am 23 and am newly diagnosed with Postural Orthostatic... READ MORE

i have just got diagnosed with dysautonomia was wondering how people handle this and any information would be great as... READ MORE

http://www.youtube.com/watch?v=8UPMYNkm6Bc&feature=youtu.be

Does anyone here have Dysautonomia/POTS and TOS-thoracic outlet syndrome? My daughter does and she's severely... READ MORE

Curious, what others with this condition are being treated with and if it's working.

Hey friends, wondering if anyone else had eye problems? I was at the neurologist yesterday and she dimmed the lights... READ MORE

Wondering how many diagnosed cases there are Dysautonomia??? Any info would be greatly appreciated?

I just got the results, in the mail, about my QSART last week. Unfortunately I only got page 1 of 3 so I don't know if... READ MORE