Dialysis Support Group
Dialysis is a type of renal replacement therapy which is used to provide an artificial replacement for lost kidney function due to renal failure. It is a life support treatment and does not treat any kidney diseases. Dialysis may be used for very sick patients who have suddenly lost their kidney function or for quite stable patients who have permanently lost their kidney...
Just joined this site. I see your first post was 2 months ago? I'm facing kidney issues for the first time in my life and a little scared, too. (Okay, I'm a lot scared.) I'm curious if you made it to dialysis or managed to evade that one.
:)
There is a lot of activity on the site, and you will get responses to your questions. I think there is even a "pre-dialysis forum" on it. Don't let the name of the site fool you, even though they say they hate dialysis (who wouldn't?) it is a good forum.
I can sympathize with your fear. My husband went on dialysis 3 years ago at age 77. It is very scary in the beginning, mostly because we did not really know about the procedure, or what would happen. It happened suddenly with no warning. If you can talk to your doctor, or maybe they can suggest a group or a pre-dialysis class you can go to maybe that would alleviate some of your fears.
While dialysis is not much fun, it is not the end of the world. It is getting used to a new way of life, and making the best of it. He's still doing dialysis 3 days a week. He goes to a dialysis center and the staff are all friendly and caring.
I hope you will come back to this site and let me know you got this message and that you have gone to the website.
I was totally not expecting to get a BFP !
http://catmarioplay.org
I will try not to scare you about dialysis.I am knew to dialysis.my kidneys shutdown completely in July.I was admitted to the hospital,catheter inserted and started dialysis that day.A little history on myself.I am diabetic and have heart disease(family history of both).I have had a time controlling my diabetes..lots of yo-yo..good and bad for the past 10 years.I had been told a few months ago that my kidneys were failing.I started researching and the more I learned the more i didn't want to go through with it.just before i was admitted to the hospital I had my regular kidney dr appt.they affirmed I was going to have to go on dialysis and if i chose not to I had 4-6 weeks to live.(the shit got real).I went home..cried..cussed..listened to my messages and my dr was on there and told me she had done a rush on my labs and to get to the ER NOW!!.I had been tired more..gained a lot of weight and was out of breath a lot.thought it was just due to the heat and eating more,but my appetite was almost nonexistent by that time.I was in denial as to what was happening.after my hospital stay I started at the dialysis center 3x a week 4 hours a day.I opted not to go on the transplant list because I feel someone who has less health issues would benefit from it more than me.Why put a healthy kidney in my diabetic body for it to damage.It isn't easy doing dialysis.On a positive note..the staff and other patients there are very nice and helpful.They make it as stressless for us as possible.You get to sit in a comfortable heated vibrating recliner,you have access to your individual tv(cable,internet access),music.Most of the time I just sleep my 4 hours lol.When I first started dialysis I didn't sleep at night,but could sleep during the day fine.that lasted about 2 months.I can now sleep at night.Dialysis is tiring,even the next day off dialysis.You do get used to it though.Planning stuff around dialysis is do-able.Some even still work,but most don't.That will be up to you and your employer.I'm on disability so living on 60% salary.There are resources available to you..If there is time,go through the education process and learn all you can..visit a dialysis center..You will hear good and bad about dialysis..you will hear positive and negative..everyone deals with it differently.Good Luck and keep in touch..Good Bless