Degenerative Disc Disease Support Group
Degeneration of the intervertebral disc, which is often called "degenerative disc disease" (DDD) of the spine, DDD is in fact a condition that can be painful and can greatly affect the quality of one's life. While disc degeneration is not a normal part of aging and for most people is not a problem, for certain individuals a degenerated disc can cause severe constant...
Tom30458
I reckon I am gonna go ahead and state it on here right now. The epidurals that I got on my lower back on Tuesday, down in Savannah, must not have done much good. I woke up Wednesday thinking so. I did have some epidurals back in the winter as well. I was not impresssed then too much. It is the second day in a row since that I woke up with back pain that must be at least a 5. Yep!
I do have some pain in uppper back/lower neck area as well. I did take something and do have on heating pad right now. Pain will go down a little bit. OK. I deal with interstitial cystitis, which is considered to be a chronic pain condition. Anyhow, some of us don't have all the pain with it.(or not always)(or currently in remission) At least, I was thankful to have IC without being a chronic pain person. OK. I still ended up being a chronic pain person due to degenerative disc disease. What a bummer! Yep! One thing about interstitial cystitis is that the pain from it has actually been compared to that of having stage 4 cancer. (even though some IC patients have a hard time getting any prescribed pain medication at all) OK. I am not sure my pain would ever be compared to stage 4 cancer, but I don't figure any individual should enjoy being a chronic pain person at all.
I do have some pain in uppper back/lower neck area as well. I did take something and do have on heating pad right now. Pain will go down a little bit. OK. I deal with interstitial cystitis, which is considered to be a chronic pain condition. Anyhow, some of us don't have all the pain with it.(or not always)(or currently in remission) At least, I was thankful to have IC without being a chronic pain person. OK. I still ended up being a chronic pain person due to degenerative disc disease. What a bummer! Yep! One thing about interstitial cystitis is that the pain from it has actually been compared to that of having stage 4 cancer. (even though some IC patients have a hard time getting any prescribed pain medication at all) OK. I am not sure my pain would ever be compared to stage 4 cancer, but I don't figure any individual should enjoy being a chronic pain person at all.
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I have an appointment with a pain management psychiatrist and will let everyone know how that goes.
Physical therapy told me I could improve because my pain is due to "tense muscles" and nothing more. (I cancelled the rest of the physical therapy with that clinic)
Here's hoping you find a bit of relief soon.
I know just how you feel. I quit having the epidurals in my back and whatever they are called for my neck. All I know is that for days after having either one I was in 10 times more pain.
I have DDD in my C3 and C4 disc in neck, and lower back, can't quite remember which lumbar #'s are for my back though, it's been a long time since I was dx'd.
I remember though right after the first shot in my neck I was in tears and on the phone for days. The nurses treated me like crap. They acted like all I wanted was pain pills or something. I kept telling them NO I don't want drugs, I just want to feel better. I quit going to that pain specialist.
I found another pain specialist that gave me shots in my head to numb the nerve endings as the DDD in neck was causing pain off the 1-10 scale. If you've ever suffered from a migraine you know how bad that pain is, well these headaches I was getting was like a migraine being an annoying little headache, the pain I was now having was BAD, it HURT.
I finally quit getting the horrendous headaches so no more shots. I do take Baclofen, Gabapentin, and Tizanidine now for the pain. On good days it takes the pain down to a 3 or 4, not a day doesn't go by that I am not in some kind of pain from the neck.
Funny thing is though, the neck seemed to be getting worse the last month or so. And my back was off the charts, many days not even able to get out of bed, or if I did get out of bed I needed help walking and getting up and down the stairs. I went to the doctor last Monday and he ordered another MRI on both neck and back.
I talked to the nurse on Friday for test results. She said there is NOTHING wrong with my neck, the DDD is gone, and the same with my back. She said my back pain is from significant arthritis in lower back, hip, and tailbone area.
Okay I say, that answers the back pain issue but someone better be figuring something out for the neck because there is NO way it is better with the pain I am in still. I am having an increase in general pain from top of neck clear down my spine. Excruciating pain from the muscle spasms, they go from the middle of my neck down my spine almost to the hip area. I am seriously thinking they didn't get C3 and C4 area in the MRI picture.
If anyone has had an MRI on their neck lately you would know that they have a "mask" type thing they put over your head. I didn't think too much of it at the time but after talking to the nurse and thinking about that mask, if I am remembering correctly the back of this mask thing was on the C3-C4 area, I just don't think they got a good MRI of it.
The nurse was going to talk to doctor tomorrow and see what is going on.
Tom, have you been on any other kinds of meds or just had the epidurals? I literally feel your pain, even though it has been several years since I went through what you are going through the pain was so bad that to this day I can still "feel" it.
I wish you all the best.
Kimmers
I had that experience as well. I was told the shots would last up to 3 months. However once they started working they barely last 2 or 3 weeks. At that point they can't give you another shot for several more weeks. That's when they put me on all kinds of muscle relaxants, anti-spasmatic meds, and pain killers. None of these meds work very well, on a good day they take the edge off the pain.
I can't have surgery on my neck as my DDD is too close to the brain stem being in C3 and C4. My back appears to have gotten better although after the MRI I just had last Wednesday it appears as though now I have to deal with arthritis in the hip, back, and tailbone areas. Oh goody...just what I need. On top of bipolar, narcolepsy, DDD in neck and now they tell me I have arthritis.
I too went to physical therapy. I was a bit on the lucky side. I will never forget the pain that caused. I was lucky because after my first session the therapist said they couldn't help me and referred me back to pain specialist. I say I'm lucky because at least they weren't like the therapist you got and said it was just tense muscles.
It has been very depressing, one would think I was in my 60's or something, but I am only 48 and am being told I may never work again due to narcolepsy and DDD.
Oh well, I guess that's life.
Hope you find some help and relief. Cuz this crap HURTS!
Kimmers
My PM thinks it was doing the bi-lateral on the nerve block not the actual epidural injections. So went through it again the other day only I think the girls prepping me may have got it backward & did the bilateral on the epidural injections & not the nerve block, Have to wait for the report. The key was the nerve block & most of all injecting both sides which had never been done before.
This was on my cervical.
As far as falling Tom I have take a couple falls myself, one down my stairs. I have DDD at the same location as you & out of the blue I'd just take tumble. Usually something catches me before I fall such as the wall or chairs but it has happened to me & I do believe its due to the DDD.
My surgeon said the same thing, surgery a success you should feel peachy. Well that was not the case,in fact I did not have nerve pain till after my fusion & the idiot said the dics around were going & almost did another level. Yet states I should feel just fine.
I believe some surgeons worry more about their success rate then the patient. My husband called around looking for better insurance & at the time no company would touch us because I had spinal surgery. What does that tell you? They seem to know something no one is telling us. One company stated you have to go 5yrs with no surgery & another person called for the same reason & said she was told 8yrs so who knows.
Back to the injections I think there are a lot of factors involved. Such as who is doing them, where it is done & so on. I had them on & off for 4 yrs or so & this one came the closet to relieving most of my pain. I'm still sore from the one I had the other day but if it would give me the relief of the set in march I'd be one happy camper.
I wish you the best Tom & hope you find something that gives you relief.
Sammy
I hope you can get some relief, Maybe see a pain Dr
It is recommended no more than 3 per YEAR! I've heard of people getting them monthly or every 2 weeks. This is crazy!
Do your research before you subject yourself from possible irreversible harm. There is evidence that they actually cause more harm than good, and some literature suggests that they do nothing for back problems. Be safe.