Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
Hello all,
I suffered from an acute DVT in my right leg coupled with a massive PE last August. I've had on-again, off-again pain in the DVT leg, but a few days ago I ended up at the ER because I had a pretty bad, prolonged pain in my calf (and sometimes ankle) -- a tight, sore feeling that was worse when I walked down stairs for some reason. This reminded me too much of how my leg felt prior to my PE, so I went to get a doppler/echography. It came back completely clear, but the doctor did mention something about one of my veins being a bit more rigid, perhaps in response to the trauma. I also had a clear D-dimer which apparently rules out a new DVT. My INR was 2.1 and I'm continuing anticoagulants, too, so in principle I shouldn't be worrying.
It's been three days and the pain is a bit better, but comes in fits and spurts and tends to move around from my foot to my thigh. Has anyone else experienced this? Is it safe to assume I have post-thrombotic disorder, or is common to have these muscle aches and pains after a DVT some months later? I've talked myself down from worrying so much about it, but somehow the pain there upsets me, reminds me so much of how I felt before my PE. Any insight on this would be very much appreciated! Thanks.
I suffered from an acute DVT in my right leg coupled with a massive PE last August. I've had on-again, off-again pain in the DVT leg, but a few days ago I ended up at the ER because I had a pretty bad, prolonged pain in my calf (and sometimes ankle) -- a tight, sore feeling that was worse when I walked down stairs for some reason. This reminded me too much of how my leg felt prior to my PE, so I went to get a doppler/echography. It came back completely clear, but the doctor did mention something about one of my veins being a bit more rigid, perhaps in response to the trauma. I also had a clear D-dimer which apparently rules out a new DVT. My INR was 2.1 and I'm continuing anticoagulants, too, so in principle I shouldn't be worrying.
It's been three days and the pain is a bit better, but comes in fits and spurts and tends to move around from my foot to my thigh. Has anyone else experienced this? Is it safe to assume I have post-thrombotic disorder, or is common to have these muscle aches and pains after a DVT some months later? I've talked myself down from worrying so much about it, but somehow the pain there upsets me, reminds me so much of how I felt before my PE. Any insight on this would be very much appreciated! Thanks.
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About 18 months after my leg DVT, I was diagnosed with PTS , which was diagnosed after ruling out another clot. I had some pain, but mostly redness and swelling. PTS is usually diagnosed based on physical symptoms. So, I can't say if you have PTS or not, but if you do, there's really not much you can do except where your stockings.
Hope the pain starts going away.
My DVTs are both chronic at this point and the vein in my right leg is still partially occluded, but other than the leg being larger than the other I don't really have any problems. Although, when I do have pain in my leg it is *really* easy for me to get a little paranoid about it ... even though I'm a warfarin lifer at this point.
But, good for you for getting that ultrasound! My second DVT was discovered because my leg "felt funny" in a way that reminded me of the first DVT. Better safe than sorry!
So, I guess in summary ... both the pain and the anxiety are pretty normal, at least in my experience.