That's a tough one. I was given Tramadol for tendonitis and it didn't do anything for me, plus it made me really dizzy. Very few drugs affect me adversely but that one made me feel so sick and weird. I ended up using a prescribed topical anti inflammatory 3 times a day, which believe it or not, still referenced bleeding risks if on anticoagulants or if you have GI issues that can cause bleeding, both of which I have. But I realize you can't put ointment on your spleen, ha!

What opiates are your prescribed? There are very few things we technically can take that reduce inflammation, but there are other options for pain, like Darvocet, which is just an amped up Tylenol 3 basically so it's not uber strong. I took that when I had my DVT. It didn't kill the pain completely,but it took the edge off, and I was only taking half doses, because I don't like taking stuff either. When I had my Gallbladder out last year, I was prescribed Percocet and I still have 3/4 of the bottle left because I only took it at night, and again in half dosages.

Sorry, I'm shooting blanks. I feel bad that you're in so much pain, but glad you're ok. I love that you give it hell on the bike, that's for sure!

I am super sensitive to side effectst that make me drowsy and I really hate feeling woozy or that my thought process is impaired. Therefore, I really hate taking pain pills as well. When I had my PE, the pain was too great and I didn't have much of a choice. What I ended up with was Dilaudid + Tylenol. This is the combo I stuck with while getting over the pain from my PE. I felt very alert the whole time and didn't sleep any extra.

Suprisingly, the Dilaudid did not give me the icky side effects that I had with Tramadol, Oxycodone, and morphine.

The tylenol was also huge. when I tried the 3 drugs I just mentioned, they didn't seemt to work at all, except ot make me really sleepy. It was the tylenol that seemed to help most with the pain.

I still have severe pain in my legs with my DVT so the doctor has prescribed Nucenta for me. It is a new drug on the market. Does not make me as woozy as Oxycodone and does really well on the pain without effecting my levels.

Thanks for the feedback. Pain is much better now. My pillow and icepack are my friends!

Except for Nucenta, I've tried all of the meds you mentioned. This time I told them if they put me on a morphine drip that they would have to put me on oxygen so they tried dilaudid instead. Dropped my O2 to 80% pretty quickly. So they put me on oxygen and cut the dose. Then when they tried to transition me to an oral dose, I started vomiting. Just what you want on top of the pain. At least I'm in no danger of getting addicted!

So now if anybody has questions about pain killers, we can say
"ask Jan"
Love those ice packs...

Hi Jan, I just posted a similar comment on the PE site!
I'm in the same boat...

I've been deemed a "lifer" on coumodin, and my doc says that I can take INSAID's occasionally but not for extended periods of time because they can cause stomach bleeding. I used to be an Advil addict before my DVT/PE, but I've been able to get by for the most part without them since.

However, I've got some tendinitis (Achilles) issues going on and there seems to be no way to treat it. Traditionally anti-inflammatories (which it really needs) would be the way to go, but those are on the no-no list. I'm also a "non-responder" when it comes to Tylenol, it doesn't do a thing for me (there are some people who simply don't have the receptor that Tylenol works on... I'm one of them!). My doc says my only real option is narcotics, but that there is a new law in KY that makes those almost impossible to get. (I don't want them anyway, they make me sick and fuzzy, and I need my brain functioning at full capacity!).

So I'm kind of stuck... Oh, and the tendinitis is in my DVT leg, so I'm sure the blood supply isn't that great. :-(

Has anyone else run into this? Are there ANY pain relievers and/or anti-inflammatories (or INSAIDS) that we can take? What about OTC therapies?

Thanks!
KS

Yep, I keep hoping they will come out with a new class of pain meds. I have to say giving up ibuprofen because of being on coumadin affects my daily life more than any of the other annoyances.

I am also someone who Tylenol does nothing for and took Advil daily before becoming a Warfarin "lifer". With my constant chronic pain from Post Thrombotic Syndrome my doctor has had to prescribe me narcotic pain medication. He describes me as dependent but not addicted. I am dependent because without it the pain is so severe I can't function. I have never taken more then my prescribed dose and can function normally and get no "high" from the meds. They just take the edge enough off the pain that I can get through my day.

I also take Gabapentin (Neurontin) which helps a little. That may be one option for you to try.