The pin feelings could be anxiety/panic related.

Try to remind yourself that most people who have dvts do not have cancer. A lot of doctors do exactly what yours is doing. Remind yourself too that you are on anticoagulants which is protecting you from further clots.

It’s all ok.

Thankyou so kuchen and thankyou for taking the time out to reply to me, I'm currently sat on bed worried sick, the palpitations I suffer from make this all worse cause I'm scared each time I feel one :-(

So much I ment

I was diagnosed with extensive bilateral PE on 01/20/18. On 02/07/18 I had my first panic attack, at the time I thought I was having a heart attack - elevated blood pressure, palpitations, light headed. I couldn't sleep for weeks. Three panic attacks later I agreed to try anti-anxiety medication and now can identify when an attack is coming on and try to breathe through. Learning from the pain of the PE, I now ask myself "can I still breathe and breathe without pain?" The answer is always yes, so I know the symptoms will pass, so I try to relax and breathe through it. It is scary, but I'm working to acknowledge every pain, palpitation and weird feeling so that if it comes again I can tell if it is new or similar. Journaling helps to keep track of this and its frequency. It will get better, but it will take some time. Hang in there!

Thanks so much, I've actually suffered with ectopic beats for years but since my pe diagnosis there scaring me more I'm terrified, I ended up in a and e last night and after numerous tests ecgs and blood tests that all came back fine I'm still convinced they've missed something, my doctor is booking a heart scan for me and now I'm convinced he's done this because he thinks there's something wrong, even though the doc said my heart sounds fine and doesn't sound like anythings leaking I'm not convinced, I'm so scared and feel terrified of every pain I feel, just like the little pin prick feelings I feel too in my legs and places

If you are that concerned, go to the ER. Tell them your symptoms and tell them if your new diagnoses. You won’t wait long and you will have piece of mind

So you went to the ER last night and they found no issues. That is GREAT! Remember that. Your doc has no reason to lie or be secretive about why he’s checking your heart.

I agree to go to the ER when in doubt but you clearly recognize you are in a state of panic, right? So, what do you typically do to help yourself when you feel panicked or anxious? I try to do body scan meditation to slow my thoughts down and really get present with my body and mind.

The emotional fall out from having gone through a really scarey health event is very real. So you have to come up with some coping strategies so you can not feel terrified all the time. Because feeling anxious and stressed all the time actually amplifies discomfort, pain, shortness of breath, heart rate, etc. Consider talking to someone. I saw a therapist a few times after my PEs and it really help me.

I had massive PEs, both lungs, a dvt from calf to thigh, heart damage (it corrected itself over time), a filter inserted, was in the ICU for 3 days and in the heart unit for 4 days. And I am completely normal and healthy. I’m like most PE survivors in that most of us and I really mean most of us fully recover. You are going to be ok.

Thankyou so much, I am definitely going to speak to my gp about some medication for my anxiety, I had my ct scan yesterday on my abdomen and pelvis and it was clear, I keep getting pains in my leg which is worrying me but the doctor wasn't concerned, I am constantly worrying it's taking over my life, I will definitely try your techniques thankyou

Please take good care of your emotional health in this. Definitely talk to your GP about the anxiety you are experiencing. It really is very common to experience that after a PE, and if you are already an anxious person, it’s like the perfect storm for sending your anxiety through the roof. That level of hyper vigilance is very taxing.

I’m so glad your scan came back normal.

You are not alone in this. I too am having many of the same things.

I do like the idea of slowing down. I put on golf or some other boring monotonous tv and do deep breathing excercises.

Hi - I was diagnosed with DVT of left leg last month at the end of May. Before diagnosis I was pretty sure it was a DVT and was on the brink of panic when my ankle began to swell before I went to the hospital. I can definitely relate to the feelings of hyper-vigilance, anxiety and paranoia that something else is wrong. It is hard to just put it out of your mind and live normally. Trying to slow down and think about probability and having a schedule really helps. As well as family support. Taking walks really helps with my anxiety as well, when I sit in one place too long I tend to worry.

Thanks so much everyone, I guess I'm just super anxious at the moment, I have a heart scan booked for the 3rd July that my gp said he was doing as a precaution because of the pvcs I get this has now made me worry even more :-(

Try not to worry. Think of it as your doctor is just gathering information. If he was that concerned, he’d have gotten you in for tests right away.

I had a DVT and bilateral PE. That was four years ago. I had a lot of anxiety I had to work thru. I have a life, I have responsibilities and I refuse to let this bother me to a point I don't have the life I want. I have a farm and all that entails. I board horses and am on tractors and lawnmowers. I've had my horse break my pinkie toe. I've been knocked down once and shoved by the horses a few times. I've taken two headers into the ground when my shoe got caught in an exposed tree root. I bruised my ribs when I tripped on another exposed root. It was winter and that meant rain sheets and blankets on the horses. I don't think I'm invincible and I do work as safely as possible. My dad had a saying I heard a lot because of his work. It wasn't his time to go. I"ve said that a few times myself. Especially when I walked out of the hospital after the DVT and PEs. I just refuse to live my life in fear that a another DVT or PE might do me in. I don't work as long or as hard as I did before but I do still manage to do what I love. This is not saying to think like me. I'm a bit of an oddball. You have to find a way to make the life you want with consideration for your medical problems. I did end up in hospital with anxiety about 3 years ago. Once I knew what it was I let go of that anxiety and I am very careful with what I do. You'll find your way thru this in time. You'll decide what is most important and a safe way to have the life you want.