Deep Vein Thrombosis (DVT) Support Group

Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.

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Heart, Blood & Circulation
/ Deep Vein Thrombosis (DVT) Support Group

New DVT & PE age 32

ScottytheAussie
ScottytheAussie

hi guys


it was suggested that I join this group to help with my recent news of a large dvt in my leg and a PE in my lung. I don't really know much about what I have and am wondering if it's going to change my life or I'll be back to normal soon? I'm injecting 2 times daily, and have just started being able to walk.


thanks Scotty 

rmb
rmb
There's a PE group that you may find helpful. Honestly, most people do just fine after having been diagnosed with a clot. It's just that the recovery can be slow going. So I would say it temporarily changes your life. If it ends up you need to be anticoagulants long term that could change your life in that you'll need to be more mindful of bleeding risks but not to the point where you need to live in a bubble. There are always complications from any health issue but those are more the exception than the rule and I think it's not anything to worry about at this point unless your doctor has reasons to be concerned.
TossNTurn
TossNTurn
Well, for the short-term, it'll definitely change your life, just like breaking a leg would do. Eventually, I think most of us wind up about back where we started. It can take a while though. With the PEs, especially, I'd be prepared to have symptoms that come and go for at least six months. You will have good days, but you'll also be tired (or have other symptoms) on other days. It's definitely not a straight line.

And, not every clot is the same. I've had two DVTs (and one round of PEs) and my first DVT took about two years to feel 100%. The second one took about a week. Which is not to say that I was completely incapacitated for two years... just that that was about how long it took me to stop dropping into a limp when I was tired, when I felt like I could cross my legs again.

Hang in there!
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