Deep Vein Thrombosis (DVT) Support Group

Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.

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Leg looks different

libbylaz4
libbylaz4
Hi All, I have not been too active because I have been busy with settling in to life after this turbulent year. Friday is the one year anniversary of my husband's SCA so I am feeling relatively emotional. Anyway, he has started a new assignment at work. It is challenging because he feels he has sustained some brain damage but he was so smart to begin with he is probably closer to average than he was. So Friday he got home after working a day that was way too long. Last week he really overdid things. Yesterday he was very down, depressed and said he felt extremely weak. I am stressed because he has not had an INR test in 3 weeks. He is due to go tomorrow. He also had some discolouration on his ankle that I mentioned. But the reason I am having extreme anxiety now is that on the leg we suspect that had the DVT ( none of this was ever confirmed for sure) I noticed it looks like one big vein looks varicosed for a considerable length of his leg. I have never noticed this before. Obviously I am very anxious. I will cal the doctor as soon as he opens up. He is supposed to have an ultrasound but has to schedule it. I am not a baby but I want to cry. I don't know if I am just freaking myself out. I am worried. Obviously I will have it looked in to. So I am worried because he is tired, weak, down and that leg looks bad. Im scared and reaching out to my DS family. I have not read up on everyone but I am sending my love and well wishes to you all that have been a part of this amazing family that means so much to me. I keep everyone in my prayers and thoughts. Can anyone cheer me up? It is not going to be an easy week for me.
rmb
rmb
Just put a call into his doc, and see what he says. Scheduling the ultrasound may give you peace of mind. His fatigue may just be due to overdoing it. Please try not to be worried. It's all ok. Just call the doc and see what he says.
luckymommyto2boys
luckymommyto2boys
I have the varicose veins running down the side of my DVT leg as well. Big old knotty things. And they didn't start showing up until several years after the initial DVT. I'm sure it's nothing, but a call/trip to the doctor will be reassuring nonetheless.
rmb
rmb
Yeah, I have varicose veins anyway, but the veins in my DVT leg became much more pronounced after my DVT.
deleted_user
deleted_user
I also have some very large varicose veins on my DVT leg. They supposedly develop to help with the blood flow - if you are worried, don't hesitate to ask your doctor.

Your husband needs to pace himself. I'm still taking life easier after my last (third) DVT that was 21 months ago.
libbylaz4
libbylaz4
Thanks all. Yes that vein appearance is something new. He has 2 doctors appts. He just got home and is already in bed. I feel unable to let go yet. I have not taken one day off in a year. Meaning a day off from worry. I have tried. I know that the things he experiences are part of the package. He has come so so far. I just dont want him to do anything that might create a setback. I am leaving on July 7th for a vacation with all my children. I am leaving him alone with the pets and the housekeeper will come daily. I never hesitated in the past to jump at a chance to go away. Now I dont even have the desire. But I know I have go to get myself out and away. Anyway I am droning on sorry. Just feel afraid to feel happy. Dont want anything good to get snatched back! I am sure you all know the feeling. Anyway, thank you again. I will feel better when I see INR tomorrow. God Bless
rmb
rmb
Ok, I'm going to do a little tough love here, and I mean it from the best possible place so please hear that.

You need to look out for your own health and happiness for a bit. He's a grown man, and surely if he's unwell, he'd have the ability to contact his doctor if there's an issue. You constantly worrying and fretting is not happiness. It's a prison. Life is passing by and worrying is the illusion of control.

Life changes, life goes on, life ends, whether you worry or not. So please, please, just try to let some of that go, for your own sake.
libbylaz4
libbylaz4
Im glad you said it and i know its true. My children keep telling me the same thing. This me is the polar opposite of the old me who feels she maybe did not care enough. And that this was a wake up call not to take anyone for granted. I remember the days i tried to find assignments for him as far away from me as possible! So looks like i do have some work to do on myself because this is beginning to take a toll on me. Thanks. Xxx
rmb
rmb
You deserve to be able to just relax and be comfortable again in your own skin, in your own thoughts. My husband became very over protective of me for a while after my PE and as much as I felt loved by that, as my life started getting back to normal, it started changing our relationship from husband and wife to a parent / child . It made me crazy and was a burden he didn't need to carry. So take some time to just unwind and not feel the burden of worry for a bit. It's ok to not take that on.
luckymommyto2boys
luckymommyto2boys
I agree with rmb. My biggest incident was before I met dh, but after I had my c-section with my oldest son, I had something like 2 DVTs and 4 superficial clots pop up, starting before I even left the hospital, although I just attributed it to swelling at the time. I ended up back in the hospital for a week when my son was less than a week old. Dh fussed all over me, and while I appreciated it, I think it really held me back in some ways. It actually even got to where I wouldn't tell him when I had a new or different pain, simply because I didn't want to worry him. Now, ten years later, it doesn't even faze him when my leg swells and gets more purple that usual. He's just as used to it as I am. You could make yourself sick worrying about all of the "what ifs" in life. Worrying about tomorrow will do nothing but steal the joy from today.
rmb
rmb
Yup!
libbylaz4
libbylaz4
Thanks all! Obviously I'm suffering with guilt. As some of you know my 18 year old daughter was hit by a car. Then my father passed away then a few days later my husband had the cardiac arrest! It was too much all at once. Im doing my best. My daughter has another operation in june. We got hit all at once but my faith has helped carry me through. That and my DS family. Also living life one day at a time. The one year anniversary is friday. I cant believe it!! Unreal. Anyway Thanks for the support it truly matters and really helps.
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