Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
sandysan5743
I have been experiencing some upper back (between the should blades) pain and discomfort. A little stabbing pain with breath, generalized discomfort with movement and walking. Difficulty and discomfort with swallowing.
A little background. I had a DVT diagnosed in February. Was put on Warfarin. Experienced two mini-strokes while on Warfarin. Had a test performed that showed a hole in my heart (POF) and was tested positive for Factor V.
So - last night - alone in bed, I began to panic. I was certain that I was experiencing a PE! I know, logically, that it cannot be as I am on Warfarin. But.... in the middle of the night, alone, I was in a panic.
Is this going to be my life? Will I over-analyze every ached and pain that I have? NO!!! I can't stand this. I am a rational, logical woman. I MUST get a handle on this fear. I am seeing a Hematologist tomorrow. Does anyone have any other suggestions?
Sandy
A little background. I had a DVT diagnosed in February. Was put on Warfarin. Experienced two mini-strokes while on Warfarin. Had a test performed that showed a hole in my heart (POF) and was tested positive for Factor V.
So - last night - alone in bed, I began to panic. I was certain that I was experiencing a PE! I know, logically, that it cannot be as I am on Warfarin. But.... in the middle of the night, alone, I was in a panic.
Is this going to be my life? Will I over-analyze every ached and pain that I have? NO!!! I can't stand this. I am a rational, logical woman. I MUST get a handle on this fear. I am seeing a Hematologist tomorrow. Does anyone have any other suggestions?
Sandy
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I actually found therapy to be really helpful with working through the hyper vigilance about my body. That, and I started doing something like this, which as kooky as it sounds, was super helpful:
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I was on meds about 5 years ago, while going through a divorce. Celexa and Ativan. I don't know how well the Celexa worked, but the Ativan was like a memory eraser!! Don't want to go there again. I think I'm going to use rmb's relaxation technique. It looks like I'm going to be alone, and I need to cope with this stuff on my own.
I think there are many ways to approach it, meds, therapy, exercise, yoga, medication, all the of above, a combination of the above. So there are options and the bigger take away is that it's not just something you have to now put up with as your part of your life now.
I can't speak highly enough about therapy to help with this, but I know that's not everyone's bag. In fact, I didn't know it was my bag until I actually pulled the trigger and sought help. It was a revelation to me. But it's finding what makes sense for you. You've been through a lot of shit. I'd be surprised if you didn't have feelings of panic and fear.
Medication is your second line of defense, and I agree with what everyone here says. Personally, I think SSRIs (Lexapro, Cymbalta, Prozac) are useless for anxiety, and are more addictive and have a worse side effect profile than drugs like Ativan. (Lucky, I loved your metaphor about the Escher painting!) They work on the neurotransmitter serotonin, to me, they seem like bad acid-- the jittery, weird depersonalized feeling without any of the insight or visuals. A LOT of my clients have had serious problems with them.
Ativan is the best of the benzodiazepenes-- lowest abuse potential, tolerance isn't that bad, the same dose keeps working, most effective-- with Klonopin being one of the most dangerous, though many doctors are convinced the reverse is true. I'm not speaking as a clinician, this is purely anecdotal advice based only on my own experience and what friends have told me.
Ativan does cause anteretograde amnesia, so you will forget stuff that happens after you take it. What I do is take it at about 10:30, (we eat dinner at around 11:00) when my anxiety is worst. I can remember anything up until 11:45, and then it gets kind of hazy... like, I remember pulling the chicken off the grill, my wife telling me it's perfect, and I remember checking the doors to make sure they're locked, feeding the turtles, and putting the cover on the grill. I remember the mission critical stuff, but that's it. For me, the tradeoff is worth it.
There are great CBT techniques for reducing panic attacks. I think acupuncture is definitely worth a try, don't do it myself, but lots of people have had great luck with it.
As far as meds go, there are antianxiety drugs that won't make you feel like a zombie. I have been on Effexor for years, and it has made a huge difference in my life. My depression is manageable with it, and it takes the edge off the anxiety. There are also the "Valium" type drugs that can help during an actual anxiety attack, but not for regular daily use. Talk to your pcp or psychiatrist for help with this. Just because one drug didn't work, there are lots of others out there to try.
Time also helps. I don't freak out as much now that I'm 2 years post last DVT and 4 years post PE. But I do worry when my DVT leg is sorer than normal, or swells more than normal. Just relax and if the pain doesn't go away - get it checked out. I'd rather be wrong and have to apologize to the doc, than wind up in ICU again.
Breathe!