Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
As far as diet went this past week I pretty much ate what I usually eat. I had a salad nearly every day. I think the problem is the 5mg of Warfarin. I checked my old bottles of Warfarin from 3 years ago and there were 2mgs and 1 mgs but never a 5. I called my old doctor in Brooklyn but she was on vacation. I wanted to ask her what dosage she was giving me back then. I am getting tired of all of this. Trying to get old medical info is like pulling teeth!
Only two weeks into starting warfarin management again, I think that's far too little time to give it up. It's not unusual for it to take several weeks to get into a comfortable dosage, and I think that unfortunately there are a lot of doctors who aren't very good at warfarin management, so for them it's easier also just to jump over to one of the new anticoagulants. Good for you, doing the research and figuring out what you're comfortable with doing. I hope it won't take too long to get your INR under control.
So far I have not had a bleeding incident with a 5.6 INR. I am so grateful for that as I was scared to death yesterday afternoon when the nurse called to tell me. Actually, I had to ask her what the INR was as I believe she only wanted to tell me to skip the Warfarin for two days and see the doc on day 3.
Also, I had a benign tumor and a cyst on one of my kidney's a long while ago and that might have been why I had internal bleeding 3 years ago when my INR was at 3.8. Another reason to keep taking the Warfarin because of the fact that there are reversal agents with Warfarin and not with the newer drugs.
Also, why start me on a dosage of 5mg of Warfarin when I read yesterday that the elderly (65+) should be started at 2.5-3.5 mgs.
I am prepared to change docs if she doesn't listen to me. I will suggest that she put me on a 2.5 mgs. I believe that's what I was on when I had my last blood clot in 2012.
Quite frankly I am getting tired of doing the research that my doctor ought to be doing. I guess most of us are.
It's excellent that you're tracking dosage and your reactions. It's also good that you're willing to go in and argue if you aren't feeling heard. Definitely be assertive about what you need/want and work with your doc to figure out what is best for you. You clearly know that a one-size-fits-all-treatment won't work for everyone, so it is always good to try to stay on top of some of it yourself.
Hopefully, it won't take too long to get your INR under control, but don't be afraid to ask your doctor how many patients she has on warfarin to see what her experience is. Not all doctors are good at managing warfarin and it might be time to walk if this one can't get this sorted out to your satisfaction.
I have old prescription bottles from the last clot in 2013. One of the bottles has 1 mg tablets and it says to take one and a half every day. So, back then the doc had me on 1.5 a day which is pretty low. She did that after I bled internally for 3 days. Better to go low and work your way up. I will bring that bottle to the doctor today. If I don't like what she has to say I will ask for a referral back to the hematologist that I saw in 2013. I am no longer with that practice group of physicians and I am now on Medicare so I am not sure if she can refer someone out of her "referral circle". If not, I may have to change doctors altogether. It's my life and I'd love to see my three granddaughters grow up. Whatever standard protocol she is using does NOT work for me!
Will check in later after my appointment. Thanks to all for encouragement.
We are going to work together on this and she listened to what I had to say. It was a good meeting. My INR is at 4.8 even after not having taken Warfarin for almost three days. Another blood test tomorrow.
Her nurse will send me literature on food.
All in all, a good day.
When I told the woman who was drawing blood this morning that my INR was 5.6 a few days ago, you should have seen the look of horror on her face.
When the tech person looks shocked, well, what more can I say.
The moral of this story is that you should always question things when they don't make sense to you. My doctor was following the regular protocol which apparently does not work for me as I appear to be very sensitive to Warfarin. Next time I need old medical records I will just have to get in the car and go get them myself instead of waiting for some administrator to get around to it. It took me 2 weeks to get that info. Had I had it sooner, my current doctor would have seen that my former doctor had me on a very low dose of Warfarin.
Live and learn.