Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
Hi. I am a 40 year old woman. Non smoker, healthy, normal weight and a runner. I was diagnosed with my first DVT in October after a vacation and 3 hour flight. It is attributed to being on birth control pills for years. Clot was Femoral to popetiel vein. I had slight swelling in my calf and shin pain when walkingg, running and standing. The day before I went to the doctor I was almost dragging my leg it hurt so bad. Along with tightness behind my knee. I have been on xeralto for almost two months now. And very anxious
The pain has subsided some but I still get a very achy leg in my calf and behind my knee after longer runs. I went back to the doctor last week and he measured and looked me over and assured me there was no swelling and that it is part of the healing process. I am constantly worried I will get another DVT even while on the blood thinners. Which he also told me percentage wise was close to zero.
i am concerned that if I am this concerned now I will be a basket case when I actually am taken off the xelarto. And I was wondering if anyone had this type of lingering pain that comes and goes a few months out. Some days are way worse than others!
Thank you in advance for any replies.
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
I had a very similar experience as you, very fit, healthy, non smoker who got a blood clot in my right calf that the doctors blamed on birth control. I too was on xarelto for three months and felt the anxiety you're experiencing. I had a panic attack the day before I went back to the doctor to go off of the xarelto but the transition has been a lot easier than I was expecting. I take a baby aspirin daily which eases some of my anxiety but the important thing is I now know what it feels like and can understand the warning signs better. It really does get better with time and I've been told a lot of people only experience one clotting episode so I'm hopeful to be in that category!
My doctor explained to me that when you have a clot your vein can stay dilated for quite some time after it goes away, and dilated veins give you that achy feeling after being up and about.
Hang in there, it'll get easier day by day!
I'm sure it will get easier and I am going to talk to a therapist next week regarding my anxiety. I read your story and it sounded so similar to mine! Thank you again for the reply. Reading these posts makes it a little easier.