Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
Discussion/Advice re: It's hard to know
Margr
It's hard to know what's going on deep inside our physical selves. I'm trying to figure out if I need to go to the ER tonight. My DVT/PE was Sept. 2011, with no recurrence since. There's constant pain, but I've got the meds to address that. Then today the meds didn't touch the pain. My calf is slightly swollen (an inch bigger than usual) and is warmer than my other, non-clot calf. It's hard to know if this is because I walked more than usual yesterday, or because of abrupt outside temperature changes (which have been wild up here in Michigan), or because of a possible new clot. I've gone to the ER several times since 2011, all turning up nothing. I hate driving up insurance premiums for my colleagues by these expensive incidents. But I hate the worry of sitting home, wondering. I've opted not to take anticoagulants, so I have no assurance from that treatment. That was a decision I made as assisted by the Mayo Clinic, and I'm usually comfortable with it. I'm FVL hetero, and got the clot b/c of taking birth control pills for a few months. It is thought there is little likelihood of recurrence, but I know the injured veins can increase those chances. So my impulse is to ask your advice; but it's hard to know what to do, isn't it. We all have to figure out our own unique responses to the myriad issues of recovery. I have some Lovenox at home, so I just injected that, thinking I'll reassess in the morning. Best wishes to you all; I know I'm in good company in this, with all of you.
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The symptoms you describe sound like something I would have checked out.
If you are concerned about driving up costs, it will cost your insurance company less to check it out early rather than to wait until it turns into a PE.
Mostly, if you are concerned, it's better to take away the worry and get it checked out. Finding out it is nothing is a good thing. But if it is something, it is better to find it earlier than later.
Good Luck!
With the Lovenox, though, I imagine you'd be OK waiting until the morning to call your doctor. And, that is what I'd do first thing. Call, and then get his/her opinion and see where to go from there.
But, if you're gonna be up all night thinking about it, you might as well get checked now. If it really is another clot, insurance premiums are the least of your worries.
Keep us posted! Hope it is nothing!
Keep us posted!
I myself have been struggling with constant pain since my initial DVT. My pain levels can get really high when I push physical activities above the normal level that my leg has become accustom to. On those days the pain meds that I normally take do not touch all of the pain. I have also been back to the emergency room a couple of times to check for new clots. Every time it has turned out to be a false alarm.
It's really hard to know when to go to the emergency room. When my last trip to the emergency room turned out to be a false alarm, the ER Physician who treated me sais that I made the right call by coming in to get the leg checked out. He said if he was in my shoes with the previous DVT/PE, he would have made the same call! Ultimately it's your decision to make; especially since you are no longer on anticoagulants. If you have a second clot, you will become a lifer on thinners.
I hope everything turns out well for you! In the end you will make the right decision for you and your situation.
1) I'd listen to the advice of my mailman before I'd listen to the advice of a PA. I know that sounds harsh but unless my doc can back up what they're saying, I totally by pass them when at all possible.
2) Most receptionists are not equipped or informed to get patients in immediately. What I typically do is ask if I can leave a message for a nurse for a call back and explain the situation. If you have a good relationship with the doc and their staff, they'll usually work to get you in, find time in the schedule, etc.
3) A doc at an urgent care clinic is actually the first doctor to blow off my DVT symptoms. He told me if he felt it was a DVT, he'd have sent me to an ER immediately for an ultrasound. They didn't have the ability to do an ultrasound anyway. I wouldn't even bother with an urgent care facility when it comes to anything other than sprains, stitches or upper respiratory symptoms.
4) For me, there are two options I need to consider- go to the ER or call my regular doctor. When I had my second DVT, the symptoms were not quite the same as my first but I just had a hunch you know. This time it was my arm rather than my leg. I called my GP and she scheduled me for an ultrasound that day with a hospital. Had my doc not been able to schedule it that same day, I would have gone through the ER.
Anyway, glad it was nothing new to worry about. I feel your pain with the run around. It's so frustrating, exhausting and a real time waster. If time were money, you'd have spent more than you would have going straight to the ER.