Deep Vein Thrombosis (DVT) Support Group

Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.

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/ Deep Vein Thrombosis (DVT) Support Group

7 months post DVT and PE.. disturbed DVT leg..

Shahid
Shahid

Hi all,


First of all get well soon all of you as i defnitely know what all of you have been going through just like me.


I had a knee partial menischotomy for a knee injury from the gym 7 months ago and had an unfortunate DVT in the same leg provoked by surgery which led me to Pulmonaru embolism as well and to ICU for 2 days. I m on blood thinners since then and its been really a hell tough last few months of my life. The latest doppler i had 2 weeks ago still shows residual clot according to doctor and i mite be on blood thinners for a year in total. Then the haematologist will do my detailed blood testing whether i have any other clotting disorder in my blood.


One doctor already did do some blood tests and said i have anti lupus anti coagulant positve which means i have APS (antiphopho-antilipid Syndrome) which also contributed to my DVT nd PE besides the surgery.


My questions from all those with similar experiences that how long can i expect my leg to be normal as before or atleast close to it. AS still a hell lot of disturbance in my leg especially while sitting and the leg is bending. aching, burning, irregular movements of veins and i dont know what else. i studies on internet about the post thrombotic syndrome and i wonder if i have it already. And also will these things gradually dissolve with time or i will have to live with it for the rest of life with such a disturbed leg. As it doesnt let you to do your normal activities. 


Swimming or walking makes me feel better though with more blood circulation. plus i have to be careful about the knee as well as i had the knee surgery. Seems like stuck between the DEVIL AND THE DEEP SEA. 


I would really love to hear some comforting words and experiences of the people around me and a rough idea after how long can i expect things to be in better and bearable condition atleast if not totally normal. As thinking of it remaining like this forever really scares me alot.


I m sorry for taking a lot of your time in advance and hope to hear from you all. AND i wish you all to heal complete and real quick as we know the real value of health when we dont have one only. Get well soon all of ya.. 


See you around.. Regards

rmb
rmb
Hi, your clot will liking continue to resolve, but sometimes evidence of having had a clot remains. Still that doesn’t mean you can’t continue to see improvement. Your body forms collateral veins to compensate for the clot. You may have PTS but it may be too soon to be diagnosed with that.. However, if it is PTS there’s really not much you can do about it.

My dvt was 10 years ago and my leg still is not exactly right but it functions well. It’s just that it’s permanently larger than my other leg. It gets red, it aches and tingles sometimes. Not always but if I sit too long or am on my feet all day. Biking is one of the exercises that was great for my leg. So maybe try that but it’s different for everyone.

I would just keep trying to be active and be mindful when you may be pushing too hard with the leg.
JEB2007
JEB2007
I hope today was better for you! RMB covered a lot of it, but the important part is we do all heal at our own rate. I clotted 13 years ago, then again in the same leg (different location) three years ago. My leg will always be slightly larger than the other and it's twitchy or swelling sometimes, but overall I have a normal life. I have FVL, so there's always a chance I'll clot again, but I take what precautions I can and keep moving.
moolar
moolar
It does take a while to feel normal again, & it creeps up on you, not like you wake up one day saying you're healed, it's really gradual. Exercise is key, as have to keep the circulation going & it helps to build those collateral veins, just know when to push & when not to. I'm 5 years out, & my clot leg does look a little different, yet most people would never know the difference (but I do). Once in a while I have twinges etc that refuse to let me forget I clotted, but otherwise I rarely think about it & am just living my life as normal. Hang in there!
Shahid
Shahid
Alrite thanks alot dear fellows for your comments and useful information and advices. Yes that's true i am trying my best to be more mobile with things like swimming, cycling and walking etc as these are things make me feel better plus putting on the stocking as well on regular basis. At the same time knowing my limitations as well as i told i had partial menischotomy and my knee also hasn't fully recovered yet. But i definitely hope for the best and time will make things better with mercy of God. I hope 1-2 years down the line i will also not be thinking about it much..

I wish you all also best health and best of your times and may God keep us all protected in the future.. Thanks
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