What was the cause of your clot in the first place? That might shed some light on possibilities of reoccurence.

Despite what you see on here, most people have a clot, come off the thinners, and never clot again. Do remember that those of us who have clotted multiple times are often hanging around on these boards because we're the exceptions. It might look like most people reclot, if you only look at the people on these boards. But that really isn't true... its just that those who don't reclot aren't here... they're out living their lives.

Could you clarify what these numbers mean, i.e. 382 and 236?

To evaluate the risk of another clot after stopping on blood thinners is really hard to predict. If you provide more information about the cause of your DVT, how extensive it was and on the recovery, then I can attempt to speculate on it, then again, it would only be speculations...

luvmyrebel,

I agree with Toss wholeheartedly to remember that most people don't re-clot if they don't have a clotting disorder or other risk factor. Of course having one DVT does increase a persons chances of getting another overall; however, if it were that prevalent of a risk, no one would ever be taken off warfarin, right?

The person who manages your warfarin may not be qualified to make the determination of whether to re- scan or not.

It's good to seek information here and get people's opinions,but talk to your doc about what the test results mean for you, and why he feels you're ok to go off warfarin or why he thinks you don't need a re-scan. Ask the questions, demand a reason, etc. This is your relationship with the person who is treating you so they would know the nuances of your situation. If it's still not sitting well with you, then get a second opinion.

We really can only give your our anecdotal experience or data that discusses recurrence risks, or you could google risk of DVT recurrence and I'm sure you'd find all kinds of information. But none of us is qualified to evaluate your tests and make a guess at YOUR specific chances of reclotting. That's between you and your doctors.

As DS has noted in their Rules of the Road section:

"DailyStrength is to be used for informational purposes only. What your read on DailyStrength is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have about a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have seen on DailyStrength."

The person who was managing my warafin is a registered nurse. She manages people with DVT all day long as that is her practice. As for the numbers I posted, they are my blood levels at onset of DVT and now The higher number was at onset of DVT and lower one is as of now.. As for how I got the DVT in the first place we have no idea. I fit none of the "normal" reasons people get clots.
I am simply looking for a general guide if you will about this situation.

Still not clear what you mean by "blood levels"? . Are you referring to d-dimer test results perhaps?

Possibly. all I know is that they took blood from me the day was told had DVT and my pcp redid the same test.,that is where I am getting numbers from

A nurse who manages medication may not be the right person to recommend you getting a second scan is all I'm saying.

Unfortunately, there's no definitive answer as to who is going to clot again and who isn't. Some people have a high risk for recotting and never do so again, and some people have a low risk for clotting and clot again. If there was no reason for your clot, usually (but not always) the recommendation is to stop warfarin at 3 months, 6 months, a year, whatever the doc's protocol is.

If I upset you, I'm sorry. I was just saying your risk is specific to you and so it's something that your doc or another doc may be able to shed some light on with your case.

The risk of re-clotting is very difficult or impossible to predict with any certainty. The predictors of second DVT can be:
1) The cause of the original DVT, i.e. whether it happened "out of the blue" (unknown risk factors or idiopathic) or whether it was caused e.g. by immobility due to cast (known or transient risk factors). The risk of recurrence appear to be greater for idiopathic DVT than transient
2) The extent of damage of the original DVT, e.g. how big was the clot. Whether there is still a residual clot or not. State of the valve veins, degree of swelling and so forth, that have influence on the flow, and on degree of venous return (i.e. back flow through valves)
3) Location of the original clot, proximal versus distal
4) underlying malignancy that can promote clotting e.g. cancer, arthritis and many other diseases .
5) Physical compression of the vein, e.g May Thurner; inflammation
6) Genetic factors that promote clotting or delay lysis of clots
7) lifestyle/general health- obesity/sedative lifestyle...
8) and probably lots of other factors..

These are just several of issues that came to my mind that may influence the decision making of the doctor with regard to continue the anticoagulation treatment or stop it. Many people will never reclot, while some do. There is always a risk of stopping anticoagulaiton treatment, but there is also a risk associated to continue it (e.g. bleeding). The main thing is that the doctor makes a well informed decision based on all the data he/she has available on your case. In the end, no one can say for certain that you will never re-clot sometimes later in your life. However, the doctor may say the probability of getting a clot is smaller than having a bleeding incident and thus is a sensible decision to stop anticoagulaiton.