Some people have clotted while warfarin but it's really unusual to do so unless you have some kind of clotting disorder. Wasn't your doc going to get a second opinion as to whether those clots are new? Where are you with that?

Have you asked your doc what the plan is after the 3 months on injections. I mean, maybe just understand the steps he's taking will help you sort it out in your own mind.

Have you considered seeing someone about the anxiety. If you're feeling anxious and depressed, that may help.

I thought she was too. Have heard nothing back. I have an appointment in 2 days so will ask again. Will ask about the anxiety too.
Have an abdominal ultrasound tomorrow morning.

Yeah, I think some people get the abdominal CT just to rule out malignancy. This is a very personal question but have you ever had a screening colonoscopy. I know here in the US, they recommend getting a screening at 50.

Yes, here in canada they are recommended every five years at the age of 40 I think. I have had 2. One about 3 years ago but also get regular occult stool tests.

I was just thinking if you had a colonoscopy in the last few years, and it was normal, if out of the odd chance they found something in your colon during the CT to be concerned about, it would be something they fond relatively early. Know what I mean?

Try not to worry.

I am so sorry you are going through this.

I am new here, and read your prev post. Is there a good chance these clots are old? Did they not scan that area last time? I would def write down all your questions and concerns and take them with you to your appt. I have learned in the past 10 days that I need to be more aggressive with my doctor regarding my DVT treatment.

Regarding the screening, I understand your fears. They have yet to find a "cause" for my clot. It is scary, but I just keep telling myself that all of my other screenings and bloodwork have been normal. I keep up on all my preventive health, and even at 37yo, have had a colonoscopy. But, trust me, I get it. :-(

I have also been experiencing anxiety and depression. It stinks. My doctor gave me a script for Ativan to help with my panic attacks (which are new to me). I can't say I recommend it for everyone, but it is nice to have something just in case I need it.

Please keep us posted. I will be keeping you in my thoughts.

Thanks appreciate it. I took Ativan the first time I found out about my clots. Think I will start taking it again. I haven't had troubles with anxiety before either. I am hoping the clots are old and were missed the first time around. I mentioned this to my GP and she was going to look further as well. Haven't heard anything back so don't know if she had time or not. Its just hard because NO one really knows what we are going through do they?

So true. My mom asked me if the clot is gone and if I am better (10 days post Dx). Really??? I am on a 6m treatment, and my dr has already prepared me for longer due to the size and location of my clot.

Hang in there. Let us know what your doctor says. :-)

It is pretty scary. I don't need anxiety meds because I have accepted the fact that I am a ticking time bomb. I've made my peace with god and I'm just happy to be alive. I had a mssive DVT and a saddle embolism in my lungs. There really isn't much you can do when things are out of your congrol. It will get better though. It has for me.

Here is an article we did over at Clot Connect that discusses the psychological impact of having had a DVT/PE:

http://professionalsblog.clotconnect.org/2012/02/28/psychological-impact-of-dvt-and-pe/

Especially for new patient, the unknowns can be overwhelming and often resurface when it comes time to come of anticoagulants. Likewise, I know several PE patients who even after all these years still get pretty bad anxiety on the anniversary of their clotting episode.

Hope all goes well for you!!

R/Tom

Things are going better - had a chest xray, Abdominal Ultrasound, doppler on my other leg and all came back clear. Still need the blood work to see if I have any clotting disorders. I saw my doctor today and she had talked to the hematologist that I will be seeing - neither of them are convinced that I have a new clot, however they can't rule it out. They are concerned because they thought by now the original clot should have gotten smaller and it hasn't really after 6 months. Also I am still having a bit of pain. I am confused because from what I have read on here sometimes they never do get smaller? Regardless I guess they are erring on the side of caution. She doesn't know what will happen after 3 months of daily shots - said that would be something the hematologist will look into. Forgot to ask for Ativan though haha....

Been thinking of you, and so happy to hear this good news. I know you must be feeling somewhat relieved!

It really sounds like you have a great medical team working to keep you healthy. :-)

Thanks for thinking of me! How are you doing?

Doing okay, thanks so much for asking. Good days/bad days. Assuming this is normal in the beginning. Trying to be positive, but quite honestly I turn into a baby when the pain hits. I am a bad patient!! Ha!

Really glad that everything was clear for you, though. So awesome!

Yeah glad that part is done. Still a journey though.