So you're not in remission right now? Honestly, I think once the disease is under control, the weight will come back on fairly quickly. That's how it was with me and my UC when I first was sick. I'd lost quite a bit of weight when ill, but once I stopped having so much diarrhea and felt like eating, I gained weight right away.

But if you're looking for short term remedies, I don't know what you can or can't tolerate but eating foods higher in calories may help. Also, I know some people drink Boost and supplements like that, which may help as well, although I find those types of drinks to make me feel like crap.

Change doctors! If they aren't being receptive to weight loss this is an issue. I was down to 97 from 120....every time I ate I was in The bathroom and in pain.... Later on down the road ended up perforated intestine BC it thinned so much from constant diarehha. Take care of yourself. In the meantime I would say high calorie shakes

rmb, remission is just a very distant memory to me. I couldn't even tell you how long it's been since my Crohn's has been under control. Everything they try, nothing seems to work. It's been so bad the last 6 months or so that around Christmas I got a boil on my right leg that ulcerated, it was about 1" by 2" and took several months to heal. Then about a month ago I noticed 2 small boils on my left ankle, within a week it had turned into what they said was a stage 3, almost stage 4 ulceration [meaning it was deep enough it was into the soft tissue, stage 4 would have meant exposed bone] that was about 4" by 3", I was in the hospital for a week because my body was starting to go septic. They were even worried the first day or so they may have to amputate. I wish I could post pics on here! It was BAD though. They put in a p.i.c.c. line and I'm on my third (and hopefully final) week of taking IV Vancomycin [Antibiotic] at home. I also had to get 2 units of blood in the hospital because my hemoglobin was 7.9 [normal range is 12-15]. My doctor said both the ulcerations and the need for blood is because of the poor nutrients my body is getting because of my Crohn's. I have a home healthcare nurse coming twice a week to change my leg dressing and p.i.c.c. dressing, he also takes my vitals every time and my heart rate has been about 130 every time and my blood pressure has yet to be above 90 the whole three weeks I've been seeing him. It's running like 85/60 and has been as low as 80/56. The nurse said it should be at the very least 98. So yaa, not in remission at all... =/

I'm sorry you're so sick. This isn't right. Weight loss is expected when we're sick but YES, your doc needs to be more responsive to not just the weight, but sheesh getting your CD under control. What's his plan for that? If he has none, please get with another doc.

Also, I remember now the post you had about the boils on your ankle.

Do you have an appt a new doc in the near future?

What meds are you taking for your CD?

rmb- The "plan" is for me to get in to see a new doctor. The doctor I am seeing now is just my general practitioner, not a GI. My last GI doctor quit seeing me because he said my Crohn's was beyond his skill to manage. So he referred me to his wife who was also a GI, but all she wanted to do was experiment on me, so I asked my regular doc to refer me to someone else, he referred me to a GI I had heard wonderful things about, but I had to cancel my appointment and when I went to reschedule I [and my doctor] was told that she wasn't excepting new patients any longer. *sigh* So now I'm waiting around for my regular doctor to get me in with someone else.. Once the appointment is made it'll probably be a month to 6 weeks waiting to get in.
And at the moment I am not on any meds specifically for my Crohn's. I take prescription potassium, iron, xanax, phenergan, percocet, and the vancomycin. Doc wants to put me on a round of prednisone but not until the ulcer is closed up [which will be another month or 2].... So as you can see, sh*t storm all the way around. Lol.

That is a shit storm, one I'd not put up with for one minute longer. If you are required through your insurance to get a referral from your GP to see a GI please get on your doc's ass about it. If he's not responsive, find another GP. If you don't need his referral to see a GI, please start calling around to find one so you can get an appt.

I'm not trying be bossy or get in your business, but we sometimes need to take control of our own care and be assertive. You are unwell and the CD needs to be addressed for real so you don't continue to deteriorate.

Take control.

rmb- I do have to get a referral through my GP to get in to see a GI. And don't worry, I don't feel like you're being bossy or trying to get in my business, you're just trying to help and I appreciate that.
I really like my GP for the most part. I basically live in the middle of the center of nowhere, when I moved here about 9 years ago I went through a string of moron GP the first year or so until I finally found the one I have now. Small towns don't really attract the most talented of physicians, but I feel confident that I do have the best the area has to offer. He just has an overwhelming load of patients to care for, so while he is a good doctor it's kinda like you said, sometimes you gotta take control of your own care/bug the doctor's office to get stuff done. I plan to call Monday to see what the status of getting me an appointment with a GI is. I'm just behind myself as well on getting things done one because I have been so sick, and two, as impossible as it is to believe that anyone could have such terrible luck, 2 weeks before I went into the hospital for the ulceration in my ankle I spent a week in the hospital sitting next to my boyfriends hospital bed as he was in a very bad wreck with a semi broke his left arm and shattered his left femur. Taking care of him has been my number one priority, but now that he's starting to get around okay with a walker it's time to do some catching up on my own health maintenance. ;)

Sorry you have lost so much weight. Don't know what meds your on, that make the difference. Change your Gastrologist. I changed my Doctor because he was keeping me sick to make money.With my new doctor, I have not had a flair up in 4 years. before that 5 to 7 times a year..That predisone is a nightmare. your weight lost should be treated a long with all your problems aggressively. There is no way to gain some pounds if your in the middle of a flair ups. Take vitamins and ensure, protien shakes,etc.

I'm sorry that you are so sick and s thin but not being on any specific meds for the CD I doubt that you will gain any weight till you are in remission. If you can, drink the protein shakes and always keep yourself hydrated and please keep on your doctor about getting you in to see another GI. Take care and I hope you feel better soon.

If you can't drink the shakes try and eat as much protein as you can even if you have to eat boiled or baked chicken everyday at least it's something Keep trying till you find something that stays with you. I wish you the best of luck!