Crohn's Disease & Ulcerative Colitis Support Group
Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...
"I just wanted to write this to consolidate some information scattered around the board and also add some information I've found on my own:
VSL DS - 1 sachet - 900 Billion Bacteria - prescription only - 20 sachets per box
VSL - 1 sachet - 450 Billion Bacteria - over the counter - 30 or 10 sachets per box
VSL Capsules - 1 capsule - 112.5 Billion Bacteria - over the counter - 60 capsules per bottle
The only VSL that is covered under insurance is VSL DS. It comes in boxes of 20, each sachet contains 900 billion bacteria with the commonly prescribed dose being 2 sachets per day. This is the dose that is noted as therapeutic in the studies that have been run and the recommended dose post pouchitis, after antibiotic treatment (1.8 trillion per day).
So, following the guidelines for a daily therapeutic dose post pouchitis you'd need:
2 VSL DS sachets daily - approximate cost for 30 days WITH INSURANCE COVERAGE, $188 (will vary with coverage)
4 VSL sachets daily - approximate cost for 30 days, $296-$394 depending on bulk ordering **
16 VSL capsules daily - approximate cost for 30 days, $376-$416 depending on bulk ordering **
** Pricing based off VSL website.
As you can see it pays to try and get insurance coverage if you want to stick with the established dosing guidelines - and if you're someone that struggles with pouchitis you probably do.
Insurance coverage:
Just because your pharmacy says it isn't covered doesn't necessarily mean that is the case. The customer service reps for your insurance might also give you the wrong information (some of mine did). For example I watched my doctor electronically send an order to my Wallgreens pharmacy for the VSL DS. I went to pick it up and was told it wasn't covered by insurance because it was over the counter. I took a look and it was the regular VSL sachets which are easy to spot because they come in a box of 30. Long story short i got it covered by doing some research and supplying the NDC (National Drug Code) directly to the pharmacist, which her system took and processed.
If you've been denied insurance coverage:
Step 1 - Make sure your doctor is specifically writing the scrip for VSL DS
Step 2 - Speak to your pharmacist and supply them with the below NDC
Step 3 - My next step is exploring the mail order program to see if I can drive the price down more. I will edit this step when this is completed.
VSL DS NDC - 54482093001
I also found 2 other codes in my research and I'm not sure what they're for. I'm including them in case they are of use to anyone, possibly the international community? Not sure but if someone wants to comment on them I can edit this as needed.
GCN (Generic Code Number) is 97109
DIN (Drug Identification Number) is 00903105"
Hope this helps.
I'll be seeing my doctor again soon so I'll make sure that I ask him about it, although I suppose I'll ask my pharmacy first.
http://www.vsl3.com/
Keep us posted and good luck!