Crohn's Disease & Ulcerative Colitis Support Group
Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...
Depression is in part from having active disease. Once things are more controlled, you will start to feel better, sleep better, eat better, your blood counts will improve, etc which will make you over all feel healthier.
You will be ok. Just hang in there. The disease does not have to define you or your life.
I first started experiencing symptoms at 14. I hid all of it from my family. As I began to lose weight I just started wearing baggier clothes to try to hide it. I was only diagnosed because I tagged along on a doctors appointment for my sister and my doctor was appalled at my paleness and how out of breath I was. My resting heartrate was 160 and my hemoglobin was down to 55. I was immediately hospitalized and given my first blood transfusion. I had passed out at school, and was in and out of the bathroom all day, in pain and generally feeling unwell.
Once I was diagnosed and we found a medication that worked for me I started gaining weight back and was feeling better. As a teenager, I found that when you are feeling good, it is very hard to remember that you're sick and you need medication. I used to set reminders and turn them off without taking it. Now I find that it is easiest if I keep my medicine close to me. I like to eat dinner on the couch in front of the tv, so I keep my medicine on the coffee table in front of me and I remember to take it with my dinner. Once I started Remicade it was easier as the medication is given through IV and I didn't have to worry about taking anything anymore.
When you're feeling sick it is easy to feel down. It's hard because it takes up so much of your life. You are constantly in need of breaks and knowing where bathrooms are at all times. I feel like a burden to people that I am out with because I may not want to continue with things or even go in the first place. As time goes on you learn how to manage your feelings and you learn how to manage with a disease that isn't always easy. I have had UC for 14 years. I can tell you that as silly as it sounds, you get used to it. You get used to the way your body reacts to things and you can predict what might happen sometimes.