Crohn's Disease & Ulcerative Colitis Support Group
Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...
Sorry I must have hit the submit button by mistake and can't find out how to delete the first post.
I have just finished an incredible book entitled "My Leaky Body" by Julie Devaney.
This is the incredible story of a young womans epic journey from diagnosis to jpouch surgery and recovery to her new carreer as a teacher/performer for young interns and practicing Docs.
I'll quote from the back cover;
"Part memoir, part love story, part revolutionary manifesto, this raw harrowing, often gruesomely funny tale recounts Devaney's journey through hospitals and doctor's offices. Based upon her popular one-woman show, My Leaky Body lays bare the deficiencies in health care, creating a road map for patients and all who want to transform the system"
"Julie Devaney's startling tale of illness and resistance is gripping angry, sharply funny and eye opening. It's a revelation to get insiight into her lived experiences and sure is to find resonances in all of us"
Although this story is based around her experience in the Canadian health care system I'm absolutely positive the vast majority of her insights apply to any modern western health care system.
I only have moderate UC that is mostly controlled by Asacol, however this story moved me deeply.
I encourage all UC/C sufferers to give this book a read. It will affect you in many different ways but ultimately you will be better off for the experience.
I have just finished an incredible book entitled "My Leaky Body" by Julie Devaney.
This is the incredible story of a young womans epic journey from diagnosis to jpouch surgery and recovery to her new carreer as a teacher/performer for young interns and practicing Docs.
I'll quote from the back cover;
"Part memoir, part love story, part revolutionary manifesto, this raw harrowing, often gruesomely funny tale recounts Devaney's journey through hospitals and doctor's offices. Based upon her popular one-woman show, My Leaky Body lays bare the deficiencies in health care, creating a road map for patients and all who want to transform the system"
"Julie Devaney's startling tale of illness and resistance is gripping angry, sharply funny and eye opening. It's a revelation to get insiight into her lived experiences and sure is to find resonances in all of us"
Although this story is based around her experience in the Canadian health care system I'm absolutely positive the vast majority of her insights apply to any modern western health care system.
I only have moderate UC that is mostly controlled by Asacol, however this story moved me deeply.
I encourage all UC/C sufferers to give this book a read. It will affect you in many different ways but ultimately you will be better off for the experience.
deleted_user
You must mean systems other than the U.S. where many millions of us have to go without medical care.
squasher
It's not so much an indictment of systems ie, single payer vrs private rather the way docs and hospitals treat patients. I can't say enough about how educational as well as inspiring this book can be.
rmb
This is actually on my read list, so that's cool that you mentioned it. I'll need to bump it up.
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.