Yes for sure, mostly in my hands and wrists. I just used a lot of hot and cold treatment and stretching. I’m not sure what the calprotectin tests measures or signifies but from what my doctor said is that arthritic type pain is fairly common when you have Crohns or ulcerative colitis, but it’s not the damaging kind of arthritis.

It determines severity of inflammation. The nurse said 0-120 is normal range. I was surprised because I have had that test before and this is the first time it's been anything outside normal.

Sorry that you're having so much pain. I have arthritis all over so hard to tell if it's related to my UC
I hope you get some relief soon

Interesting. I'm very much in the early stages, currently waiting on test results that will allow commencement of Entyvio.

I am certainly in the bad Flare stage, having been there for the past few months. I have excruciating pain most morning - far more painful than having two knee replacements a couple of years ago! The pain seems to cover from my ankles through to my hip, all on the right hand side. Takes about 15 minutes to subside, until the next time I have a mad rush to the toilet. I do have arthritis of course and now I'm waiting to have more x-rays to check out the progress of the arthritis. However, I have my doubts as to the cause.

Peter

The Entyvio has worked well for me, I hope you have good results!

Thanks Jean, looking like the first infusion is set for Wednesday 18th.

Peter

Best if luck Peter, I hope it helps you as much as it has helped me

Yeah I have arthritis anyway, outside it being from flaring UC, in some of my fingers, my knees and in some of my toes. I think that is from old injuries and getting older. The joint pain from UC feels like that arthritis but with out the swelling I get with the "regular" arthritis.

mb - thanks for your input. I too have problems with my fingers (trigger finger). Other than that I seem to have progressed in as much as the pain has subsided to the point that I'm left thinking it is just down to the arthritis now. The ankle is also swollen whereas it didn't seem to be especially so earlier. The flare is with me, but not the pain. An X-Ray in these Covid time's takes upwards of 8 weeks to get an appointment, but I'm not sure much will happen, whatever the finding until well into next year or even beyond that.

Thanks

Hi.
I think I am having joint pain since I have been having flares up. I never thought of it until I read post Zetterbug . Thank you

Hi Rose,
I had never heard of anyone else having joint pain. I'm glad I asked here because my doctor isn't much help. I read somewhere that people with Crohn's and UC should eliminate sugar from their diet because it causes inflammation. That's really hard for me because everything has added sugar and I love sugar.

When I’m in remission I can eat pretty much anything. When I’m in a flare certain foods bother me. I started cutting back on sugary foods years ago but not because of UC. I just generally felt better over all by eating less sweet stuff.

The following might hep?

http://s3-eu-west-1.amazonaws.com/files.crohnsandcolitis.org.uk/Publications/Food.pdf

@ Peter ,So how did your first infusion go on the 18th?
I sure hope it helps you to feel better

Yes sugar isn't good inflamation But I find it too hard to not use it, I have a bad sweet tooth!!

Jean - the infusion seemed to go OK with no side effects that I am aware of or anything else as such. I understand these things take time and at least I was prepared for that. The next one is on the 2nd December and then on to the 30th by which time 'we' do hope for a sign of better things to come.

I probably should be exploring my diet in relation to Crohn's, but I too have a sweet tooth and a liking of spicy food. I like a beer as well. but I have at least kept away from the alcohol over the past few months.