Crohn's Disease & Ulcerative Colitis Support Group
Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...
Im new to this website, so I dont know how to start.
This summer I was diagnosed with ulcerative colitis. My doctor prescribed asacol. I had extreme hair loss from it, so I asked him to prescribe something else. He gave me lialda, but from this med. I also have horrible hair loss. After I complained to my doctor, he told me that lialda is my only option. I couldnt handle this anymore and contacted another doctor who uses untraditional methods to heal ulcerative colitis. His treatment started to help me, so I decreased my lialda dose to one tablet per day. Now after three weeks Im afraid that my symptoms are coming back. I dont know what to do. I cant stand the hair loss from lialda, and also it is a very bad time for me to get sick again. Im 20 years old, and Im a junior in college. This situation makes me feel very sad and hopeless. I dont know if I can continue living a normal life with the ulcerative colitis. I would appreciate if anyone gave my any words on encouragement or suggestions, because I dont know what to do anymore.
This summer I was diagnosed with ulcerative colitis. My doctor prescribed asacol. I had extreme hair loss from it, so I asked him to prescribe something else. He gave me lialda, but from this med. I also have horrible hair loss. After I complained to my doctor, he told me that lialda is my only option. I couldnt handle this anymore and contacted another doctor who uses untraditional methods to heal ulcerative colitis. His treatment started to help me, so I decreased my lialda dose to one tablet per day. Now after three weeks Im afraid that my symptoms are coming back. I dont know what to do. I cant stand the hair loss from lialda, and also it is a very bad time for me to get sick again. Im 20 years old, and Im a junior in college. This situation makes me feel very sad and hopeless. I dont know if I can continue living a normal life with the ulcerative colitis. I would appreciate if anyone gave my any words on encouragement or suggestions, because I dont know what to do anymore.
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
I've not lost hair from Lialda, but I have lost hair from another non UC drug I take. Sometimes it seems like we're losing more hair than we actually are, but I know for some people it can be noticable. It's a pity to stop a drug that appeared to be working due to hair loss. How much hair are you losing?
Sometimes the hair loss eases up after a while, or it falls out in cycles. I found the best way to deal with it was to cut a few inches off my hair, change my part, etc. Now it feels and looks healthier.
If you are stressed out, that can make your UC symptoms worse so I would suggest finding ways to cope with the that. Seeing a counselor is really helpful when you're trying to face these things.
I have been taking lialda for four months, and have lost more than half of my hair. I really dont want this to continue, because I imagine that being without hair would be just as bad as having colitis.
The doctor says that I will not loose all my hair, but I have a hard time believing him.