Anyone? No pain?

I have UC, so it's hard to help. I know there are people on here with Crohn's. I know sometimes with UC I get weird stomach pains, but that's mostly if I eat something that I shouldn't have or gas that's causing a flare. I hope you feel better!

I have UC too so I can't speak specifically to Crohn's pain but I don't think it's uncommon to experience pain with Crohn's.

Where's your pain?

Thanks for responding, my pain is upper left. I do have slight elevated lipase, but drs have ruled out pancreatitis. Its been going on for almost 5 yrs now

I think there's a ton of stuff that can cause upper left pain like diverticulitis or gastritis. Outside of scans, have you recently had a endoscopy/colonoscopy to see if that provides some insight?

Did they check out your heart to make sure it's not a heart issue or angina? I doubt that's the issue, but sometimes that can cause upper left sided abdominal pain.

I can say for me with my UC, I get weird pains all the time. So it seems plausible that it's directly a result from the disease even if nothing shows on a scan.

Ive had several EUS and my stomach looks good, and oddly pancreas too (as mentioned lipase is always a bit elevated). I had a Sig years ago, before the pain really kicked in so Ill be asking for a colonoscopy soon, also a gastric emptying test.

Sesser,
I have CD and have constant chronic pain with it.
Many different things can cause you pain with CD. Have you had surgeries? Ostomy? Complications from CD?
Most of my pain is a result of several major surgeries, including ostomy on and off, and many complications from surgery. My pain specialist has dx'ed me with chronic pain due to nerve damage. If you don't have a pain specialist I would recommend looking into one, even if just for a consultation, and if you find it unnecessary then at least it was another explored avenue. Most pain specialists where I live are anaesthesiologists, or internalists. I find they are really focused on the root cause of the pain and will keep looking until you have an answer.
However, I do have unexplained RLQ pain, that appears with a grapefruit size lump. It has been coming and going for a few years and ALL of my specialists including my pain specialist are stumped. Everything comes back with a question mark. We have no idea why it comes or what to do about it. It scares me, but I have to believe it isn't anything too serious as I'm constantly prodded and poked only to find nothing.
If your doctor can't seem to find the cause and has exhausted all options to find a cause, I don't think a pain specialist would hurt to try.
I wish I had a better answer for you.

Have you asked about having a laparoscopy to investigate from the inside? I know our docs don't like to go poking about in our tummies unless absolutely necessary, but it's a day surgery with three small (1 inch approx.) incisions that they put a camera in one, a tube in the other to blow up your abdomen so they can see things in there better and a third in case they need to biopsy etc. They may shed some light into the problem/cause.

Good luck!

Speakerz, I have been having the same issue. Chronic pain for a very long time now and the scans are showing my Crohns disease is only mild at the moment which is the best its ever been. Doctors say this is not explaining the severity of the pain I am having. After dealing with this for so long the only explanation I have had is that it is caused from damaged nerves due to past surgeries and that there is nothing they can do about it. I feel like i'm just going into circles trying to find help from my doctors but nothing is working. All I want is some relief and to not spend most of my days in the bathroom. Have you found anything that has worked? I'm desperate.

just wanted to add my 2cents....I also suffer from pain related to my colitis....I take percocet daily and have been doing great...totally improved my quality of life.

I have CD and my pain is where my disease is. Do you know where your inflammation is? Mine is my terminal ileum so the pain is there.