Craniosynostosis & Plagiocephaly Support Group
Craniosynostosis is a medical condition in which some or all of the sutures in the skull of an infant close too early, causing problems with normal brain and skull growth. Plagiocephaly is a condition characterized by an asymmetrical distortion (flattening of one side) of the skull. It is a common finding at birth and may be the result of a restrictive intrauterine...
Hi, I have 3 girls the youngest, who is almost nine was born with Left Coronal Craniosynostosis. She had surgery when she was 9 months and is now an intelligent and very beautiful if somewhat spoiled little girl. I just thought maybe I could give someone some support.
deleted_user
My daughter had metopic surgery at 10 months...she is now 2.5....does your daughter still have any soft spots on her skull at all? My daughter has so many....I'm afraid that she'll need a surgery in the future to fill in the soft spots.
deleted_user
That is comforting news! My son was born 9/21/2010 and he'll be having surgery on May 27th for right coronal.
deleted_user
My grand daughter is awaiting surgery in July. A little nervous.
deleted_user
I had soft spots for ~3 years after my surgery.
lilcmhos
Hi. My 4 1/2 month old son was just diagnosed with sagittal craniosynostosis. What surgery type do you all recommend? Success stories are greatly appreciate to calm this nervous momma!!
getta
Hello, My daughter was born right coronal craniosynostosis. She had surgery when she was 9 months old and was in a helmet until 3 years old. She still has a slight difference in head shape but you wouldn't know it, if I didn't point it out to you. The process was scary and didn't it blindly and haven't heart of such of things but now I see it to be more common then I knew. If you have any questions...I don't mind answering. Sending hugs to all of you.
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...