Craniosynostosis & Plagiocephaly Support Group
Craniosynostosis is a medical condition in which some or all of the sutures in the skull of an infant close too early, causing problems with normal brain and skull growth. Plagiocephaly is a condition characterized by an asymmetrical distortion (flattening of one side) of the skull. It is a common finding at birth and may be the result of a restrictive intrauterine...
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I was wondering if any one else out there is post-craniosynostosis. I had my surgery in 1975.
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I have grown up knowing there was an issue but unfortunately my family did nothing about it. It affects the upper... READ MORE
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Hi, I have 3 girls the youngest, who is almost nine was born with Left Coronal Craniosynostosis. She had surgery when... READ MORE
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i just found out my 3 month old has metopic synostosis.We are in the process of the first step of ct scan on the... READ MORE
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Hi all. My 4 1/2 month son was just diagnosed with sagittal craniosynostosis. We saw the surgeon yesterday. I had a... READ MORE
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I'm 37 years old and am trying to find out information regarding treatment for a mild craniosynostosis. I have searched... READ MORE
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my daughter is 19 months old and she was born with the back of her head completly flat and her eyes look pushed into... READ MORE
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my son just turned 7 he is very impulsive we are wondering if it could be a result of the pressure on his frontal lobe.... READ MORE
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I just found out that I an expecting my 5 child.. my other 3 who are 19,16,14 didnt have Cranio but my 18 mo did...he... READ MORE
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Hello, I am a very proud Grandma of a 3 year old and a 3 month old. I am concerned about the 3 month old grandson. ... READ MORE
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my 8 month old son is going in for surgery on the 17th of may, he was born with crainosynostosis. He is have surgery... READ MORE
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Just wondering if anyone actually visits this board. My son has positional plagiocephaly, and is currently being... READ MORE
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I think that this site will help you with resources and links, not only on pain management but how others have dealt... READ MORE
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Would like to know parents\' experiences with helmets, bands, and repositioning.
