OK my friends and DS family. I am going to take a shot at posting my exercise link again. Everyone is welcome, and I recently posted some for severely disabled, frail adults, ect, something for everyone.

Every weekend I add more exercises. Monday thru Friday I post a Paul Eugene, and an easy one for those that can not keep up with that youngster on Noah Greenspans Copd site "Breathe Easy Pulmonary Wellness for Everyone".

I can not do much, but each day I do something, just to keep this disease stable and slowed down. Everyday I do not have a problem, and stay away from doctors and hospitals, I am blessed and very happy.

This DS is home, and y'all are my DS family. So I am inviting you to check out my page,

Hugs
BJ

https://www.facebook.com/groups/946867158666365/

Brenda Rapp...I just joined your exercise group and am waiting for a response. Looking forward to getting some ideas for exercises. I am doing Suzanne Andrews dvd 5 days/wk, stationary bike at 3, 5 days/wk, treadmill at 1.7 for 15-20 min. 5 days/week. I would like some other exercises in between. Hope to hear from you soon.
Barb

Rosalee, this has only happened to me once, but that was enough. I have a 25ft cannula attached to a 7 foot green tube and I was walking from my bedroom to the living room, and suddenly my legs felt weak, and heavy at the same time, and my chest tight. I sent mark for my rescue inhaler and when he ran into the bedroom he noticed the green tube had come off the concentrator !! So what you are describing sounds just like that, like the o2 is just draining out of your body !! Hope it gets better soon !!
BJ

I think what you're experiencing is, as someone mentioned, oxygen failure. I have a similar problem where, at the risk of putting TMI out there, when my saturations drop below 85% (almost to the decimal), incontinence becomes a problem. I asked various members of my medical "team" about this, and apparently what happens is that as I get short of breath and cease oxygenating properly, my body, having a mind of its own, starts shunting all the blood supply to the places where I need it most. If you think of it as maybe each "pulse" only carrying a teaspoon of oxygen but the brain and heart each need a tablespoon*, it means my body is going to take what should have gone to keep the extremities functioning; the body tends to shut off things from the outer reaches in. Consequently, none of those extraneous things are getting the good rich oxygenated blood they want because our stupid heart and brain are hogging it all.

*Those are just random measurements I chose to illustrate the point and do not actually represent the amount of oxygen in my, or anyone else's, blood.

While watching TV last night I became SOB ... no, NB (NO breath). Can't explain it, took me by surprise Felt like I was being forced through a brick wall. Terrible chest pain, dizzy, clammy, pounding palpitations, muscle spasms. Couldn't take in a teensie breath let alone breathe out - total shut down. Panic stations. No air to PLB. I thought OK, THIS IS IT.

Husband wasn't much help, kept saying "use your pump" "lie down" "get some water" "put your feet up" "put your head back" "close your mouth, I'm trying to listen to Top Gear" Grrrrrrr.

Slowly and bit by bit I drew breath through my teeth. The weirdest thing, after this episode I felt totally relaxed, calm, breathed easily, was clear headed and strong enough to sock the old boy in the jaw.

II've been SOB more times than I've had breakfast, but never with such intense pain. Still can't explain what happened, except to say I was F-glad that THIS WASN'T IT. Has anyone had similar experience?

That had to be so scary Leonie, but glad you felt better afterwards!!!

I'm just glad I'm here to say Howdy to you. Hope you are feeling a lot better today. Any more muscle weakness /
SOB's lately? Heck if I know if it's "normal" but I don't like it. F-scary. Do you also experience huge pain in your chest?

Reading back thorugh the posts, I tend to agree that muscle weakness & SOB is associated with oxygen deprivation. But my mind can't wrap itself around this notion - seems almost like waste of time & precious energy dragging this dang O2 hose around 24/7.

Oh well, if the lungs don't work too good then oxygen don't get through too good either. Like being caught between a rock and a hard place. Aaaargh........

Take care and keep smiling.
Leonie xx

I am glad you are here too! The more energy I exert the worse it gets, seems to correlate with my HR and BP rising too. I do have chest pain.

I can't imagine being attached to an O2 hose all the time. I remember my grandfather being on O2 due to his emphysema, and towards the end he would hallucinate, seeing birds and other things in the room. When that time comes at least I am a home body anyway. My sons call me a hermit...lol

My PFT is Monday, I am a little nervous about that, but still feeling positive.

Holding thumbs & toes for you. Please keep us informed. Take care and enjoy a great week-end. :-))))) xx

I have never been a big fan of exercise but I do it because I know I feel better and sleep better when I do. I like the stationery bike because I can catch up on magazines while biking and the time goes faster but I am changing the schedule because if I do it every day I find that my legs are very sore. Every other day works - could be my age-76- or 20 extra lbs. or who knows what?

I have now added light weights to the regimen and working up to more repetitions with arm curls, etc.. I'm at the moderate stage of cold according to my doctors.

Let us know how you do on Monday with the PFT and I'll send a prayer for good luck with that.

Hugs, Cindy

Thank you for the prayers Cindy!! They are greatly appreciated.

I will update!!