Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
MayberryDeb
Hi All,
I am new to this group but a DS member for over 2 years....I just spend all my time with my home group ...the Quit Smoking group. My good friends that are part of the Pain group suggested I write to get some input from other SCS (spinal cord stimulator) patients.
I have been diagnosed with Complex Regional Pain Syndrome (CRPS) with the full nerve damage in my feet. I am waiting to schedule the surgery for a permanent spinal cord stimulator. I went thru the 7 day trial period with a lot of relief but I would like to hear from people that have had the implant for a while..how is life with it, being almost tethered to a 'control box'.. how has it changed things for you, what did you have to adapt to???
I am very nervous about the whole thing and looking for input.
Thanks, Mayberry
I am new to this group but a DS member for over 2 years....I just spend all my time with my home group ...the Quit Smoking group. My good friends that are part of the Pain group suggested I write to get some input from other SCS (spinal cord stimulator) patients.
I have been diagnosed with Complex Regional Pain Syndrome (CRPS) with the full nerve damage in my feet. I am waiting to schedule the surgery for a permanent spinal cord stimulator. I went thru the 7 day trial period with a lot of relief but I would like to hear from people that have had the implant for a while..how is life with it, being almost tethered to a 'control box'.. how has it changed things for you, what did you have to adapt to???
I am very nervous about the whole thing and looking for input.
Thanks, Mayberry
Posts You May Be Interested In
-
Hi All.... It's great to see all of the new people joining the site... I'm loving it!!...smileI'm not sure if people are aware that if you don't have Bipolar Disorder but have a loved one who has the disorder we do have a board for people to go to in order to share their experiences and seek friendship, support or adviseIt's the Friends and Family of Bipolar Board.... I hope you'll take a...
-
My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
I wish you well and keep us posted.
Is it a Boston Scientific?
Good luck.
David.
I had it for 6 months - I had to have it removed for reasons NOT related to how it works. Since you have nerve pain, you will likely get great results with it. many people have gotten their lives back by the SCS -- and it sounds like you'll be one of them. There is some tweaking involved with the SCS - for instance, when you lean back in a chair, you will find that you get ALOT more stimulation with it than if you sit forward -- you you'll have to turn it down. That's just a little "quirk" of the thing that you'll get used to.
I'm sure you found little things yourself that you'll have to get used to when you had the trial -- but there's nothing huge that should bother you. All in all, the unit is quite miraculous - and I'm so glad you're getting the implant. The surgery is a snap! It's so easy, you won't believe that you're already done when they bring you out of surgery! LOL
Mine was put just below the belt line in the side of my tummy. I liked that site better than behind in the upper butt. That would hamper how your pants fit a little more than where mine was. Plus it would be hard to sleep with it there.
I didn't really find anything that I had to "adapt" to. Things were pretty cut and dried. It was just too bad I couldn't have it longer. I hope it works well for you -- I'm sure it will. God bless. Hugs, Lee
I really don't have anything negitive to say about it, I love it and what it's done for me.
The one odd thing I've noticed is when I'm in water it feels like my legs are fizzing, that took some getting used to but if I turn it down or off I don't get that sensation.
Scientific....during the trial period their people were so wonderful and responsive.
Lee, what was the reason that yours had to be removed?? I am just curious. I know there are a few negatives with it..and it takes time getting used to..Thanks for the advice of where to put it..I would be interested in knowing where most people have put theirs.
I hope I have as much sucess as Kansass has..I will let you know.
Hun, I had my SCS installed in June of 08, and it has taken care of my nerve pain fantastically, the one thing that has not done for me, is taking care of my mechanical pain, for that I still take pain meds.
The trial is usually 5 days, and during those 5 days you are suppose to keep a pain journal so that way the Doc knows if this device will be the right thing for you. Get the trial, if it helps, get the permanent one on, if it doesn't do anything for your pain, then you need to see what else you can take to make your pain a bit more manageable.
OK, take care and let me know what you decide, OK? Big Hugs,
I already did the trial and found a great deal of relief so am going ahead with the permanent implant.
Where did you have the battery placed. I was thinking of my upper butt chgeek but want to know where others had theirs Lee had hers put in her lower tummy and I am rethinking my placement. The tummy has more room (and more fat0 so that might be a good place.
Please let me know where yours is.....
ps...Girl...can you believe how long we have been smoke free??? It is just our way of life now..We got it.!!!!!.
My battery is in my upper right cheek, and I like the placement since I don't even feel it. My leads are on T-10, and make sure that they put paddles on your SCS that way there is lest chance of lead migration.
I know about lead migration since it happened to me. One day I got up and the battery was off, I try to charge it and nothing, well since my radiculopathy is so bad, I could hardly walk, so I went to the ER and call my PM and he met there, when they did an X-ray, my leads, both of them had wrapped around the battery like a yo-yo, so I ended up staying in the hospital and gettin a Laminectomy to have the paddles put on T-10.
So if your Doc can do it at the same time, it would be better for you.
OK Hun, if you have any other questions go ahead and ask me. Oh, another thing, mine is a Boston Scientific's/Precision model, but the brand really doesn't matter since all of them do the same. OK. have a wonderful day, and happy valentine's day!!!!