Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Yes, she is at it again. And as an RSD patient, I WANT to believe her. There are reasons I don't believe her, and reasons I do. Some of what she says could come from a textbook. The RSD info was pretty textbook.
The Dr.Oz info was confusing. He never mentioned meds in his explanation except to ask if she had taken them. Yes, she said, she took meds after all the surgeries. Huh? As an RSD patient, how many surgeries do we need? Does she know something we don't?
Then she says she went online to meet others with RSD and what did they do, etc. So changing her eating made the RSD go away? Or is it gone? At one point she spoke in the present tense.
Look, if we finally have someone willing to stand up and say she has this, does it have to be someone known to be pretty messed up? I am NOT attacking her. She has her problems and IF she has RSD, I feel for her. Hell, whatever she has, I feel for her! But if it isn't RSD, don't go around saying this is what RSD looks like, b/c I never acted the way she did.
Okay, so I would've chosen someone w/o any past problems to be our spokesperson. But we now have Paula. And she says we need to eat differently to get rid of our RSD.
SIGH....I don't know what to say. The RSD was really only talked about in the 1st segment, the rest was about her age defying secret. My other fear is that people are going to want to copy Abdul and "get" RSD. There are people who look for ways to get attention. There's even a medical diagnosis for people who hurt themselves to get medical and other attention.
I'm kind of thrown by this- I think the RSD segment should've been longer and the age part much smaller. Which is more important?
To add insult to injury, this was previously aired! Did anyone see it? The only part of the entire show that interested me was Dr. Oz's explanation of the nerves and RSD.
I just never know what to think when Paula talks RSD. I KNOW we all experience it differently. But some things she said made me shake my head. For instance, she talked about using ice, that ice was her friend. And I DO know there IS someone here with RSD who also uses ice and it works for that person. But all I can think of is the 3 docs I've had over 15 plus years. Each of them saying ice is just about the worst thing we can do for RSD. I believe that different things work for different people. So maybe Paula has it and she uses ice and eating right to cure her RSD.
I apologize- my mind is just blown. I can't believe she wasted all that time and didn't talk about how medication is necessary! She skirted the issue. And anyone who saw her show "Hey Paula" KNOWS she was sure on something! She admits to meds after surgeries but why not explain that RSD has no cure (certainly not just changing your diet!) Explain that RSD means needing pain meds every day! And that there is NOTHING to be ashamed of!
I'm laying here with a bad cold/flu and watching this and my mouth dropped. Anyone else see it?
The Dr.Oz info was confusing. He never mentioned meds in his explanation except to ask if she had taken them. Yes, she said, she took meds after all the surgeries. Huh? As an RSD patient, how many surgeries do we need? Does she know something we don't?
Then she says she went online to meet others with RSD and what did they do, etc. So changing her eating made the RSD go away? Or is it gone? At one point she spoke in the present tense.
Look, if we finally have someone willing to stand up and say she has this, does it have to be someone known to be pretty messed up? I am NOT attacking her. She has her problems and IF she has RSD, I feel for her. Hell, whatever she has, I feel for her! But if it isn't RSD, don't go around saying this is what RSD looks like, b/c I never acted the way she did.
Okay, so I would've chosen someone w/o any past problems to be our spokesperson. But we now have Paula. And she says we need to eat differently to get rid of our RSD.
SIGH....I don't know what to say. The RSD was really only talked about in the 1st segment, the rest was about her age defying secret. My other fear is that people are going to want to copy Abdul and "get" RSD. There are people who look for ways to get attention. There's even a medical diagnosis for people who hurt themselves to get medical and other attention.
I'm kind of thrown by this- I think the RSD segment should've been longer and the age part much smaller. Which is more important?
To add insult to injury, this was previously aired! Did anyone see it? The only part of the entire show that interested me was Dr. Oz's explanation of the nerves and RSD.
I just never know what to think when Paula talks RSD. I KNOW we all experience it differently. But some things she said made me shake my head. For instance, she talked about using ice, that ice was her friend. And I DO know there IS someone here with RSD who also uses ice and it works for that person. But all I can think of is the 3 docs I've had over 15 plus years. Each of them saying ice is just about the worst thing we can do for RSD. I believe that different things work for different people. So maybe Paula has it and she uses ice and eating right to cure her RSD.
I apologize- my mind is just blown. I can't believe she wasted all that time and didn't talk about how medication is necessary! She skirted the issue. And anyone who saw her show "Hey Paula" KNOWS she was sure on something! She admits to meds after surgeries but why not explain that RSD has no cure (certainly not just changing your diet!) Explain that RSD means needing pain meds every day! And that there is NOTHING to be ashamed of!
I'm laying here with a bad cold/flu and watching this and my mouth dropped. Anyone else see it?
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
My FIRST reaction was before it even started. To the Title..
Paulas' RSD " confession" !?!?!? WTF? You have to " confess" a health condition? Are you given penance, as well?
The rest of my reaction was pretty much the same as yours..
" yep..that's the person RSD wants for a spokesperson. Someone who can't open her mouth without seeming dishonest"
I'm sorry..obviously I don't know the woman. Clearly she's troubled.
But..what a set-back for RSD..or any CP patient, for that matter.. is my true gut reaction.
Hugs..jc
didn't catch Dr. Oz. Never do.
Geez, first Lady Gaga has lupus(?) and now this. I want to get a disease with a spokesperson like Michael J. Fox. THEN we'd see some progress...
Sounds like a total farce to me. I don't have any respect for P.Abdul and certainly won't after hearing this. What a load of crap.
Ice and cold are my enemy. as many of you will agree. I guess someone can be helped with ice, but it kind of goes against the very nature of RSD. Nerves don't like cold.
Thanks for sharing- I'll keep my eye out on any more info about this.
Sandy
Omega 3's
B vitamins
Plant based diet (ie no meat)
No stress
No sugar.
Just do these and you will be pain free.
And I agree WTF? CONFESSIONS are for shameful things. She should be shot and left to bleed for allowing this to be a shameful confession.
I love google. I just googled "Paula Abdul" and "RSD" and it came up with a slew of articles about her, RSD and the Dr.Oz appearance.
Some people defended her- I can't believe they have RSD as badly as we do, but hey, everyone is entitled to their opinion.
I especially did like comments made on a site called www.neurotalk.psychcentral.com/showthread.php?p=908084
The replys here were generally similar to those here as DS.
Apparently, according to someone on www.livinganyway.blogspot.com, Paula has a "subtype of RSD". Huh? I never heard of that. Has anyone?
What bugs me is that she claims that Embrel helped RSD, which is totally contradictory of the way Embrel works. If Embrel really helped her, then maybe she doesn't really have RSD at all.
Like I said, I wish I had gotten Parkinson's. At least they have a spokesperson who is knowlegable and really has the disease.
Maybe some really good celebrity (like George Clooney or Jennifer Aniston) has IC. At least then I'll be able to tell everybody I have IC and not be met with stares and "what's that?". That's generally how people look at me when I tell them I have RSD too.
Sandy
Just thought that might help.
But..it was more along the lines of. Her " shocking" medication admission some years back.
Maybe someone who saw more of it can put that in context for me..:-)
I do believe ..with her history..it's likely that she has pain. And..like I said..clearly, she's troubled.
She just isn't able to seem sincere or honest, in my opinion only...
So..it just looks like someone wanting to explain away some odd behaviors from the past.
Hugs..jc
That's all I am saying
Too true..:-)
I am so new to RSD though that if i were to have watched and not have had all of you to help me through I can just imagine what I might have tried.
Cathy
I am not saying vitamins and better nutrition will not help you feel better. If you have any nutrition issues, it most likly will help. It is just that everytime some celeb starts running around talking about some disease or other, everyone thinks they are the PICTURE of all the symptoms. I struggled when the famous woman decided she had celiac. Dad still thinks she has some magic cure to make it so he has life easy while I suffer.
The lack of consideration for others from these celebs in talking like they know every derivation of even one disease process really tics me off at times.
http://www.dr-oz-reviews.net/dr-oz/1759/dr-oz-paula-abdul-rsd-reflex-sympathetic-dystrophy-chronic-pain/
For me ice is not helpful.....using a tens unit was not at all helpful, nor PT. I've found nothing except opioids useful in some degree of pain relief.
I did read an abstract that mentions that in RSD patients 87% are cold intolerant and 13% heat intolerant. I'll post the link. I found the abstract useful when first diagnosed, even though some what dated.
http://www.rsdrx.com/rsdpuz4.0/puz_102.html
Good ole Paula!