Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Ever since I got sick, I do not sleep well. It goes in cycles depending on where I am in my flaring. I've had a lot of years to get used to it, I don't like it but it's better than fighting it the whole way like my husband. Since I am up and my husband doesn't put things away I tend to leave some lights and night lights on in the house. With the economy my husband has wanted to be more frugal and wanted those lights out. I never really agreed, but he's the one who turns them off every night so I figured if he was that adament about it I'd let it go.
Well last night it happened just like I knew it would. I was restless had gotten up for something to drink and did not see my dog in the middle of the floor and stepped right on her. She yelped like she was being skinned a live. She is a rescue and was kicked so I am thinking she thught I kicked her more than she was hurt. And that breaks my heart. I had a melt down. I put her in my lap(sort of, she's 60lbs) and just sobbed. She was shaking and I felt horrible. I don't ever want her to think I hit, kicked, anything her except love and take care of. I was exhausted and I know I over reacted, but I still feel bad.
So being a typical male, he blamed on me being up and fell right back to sleep while I curled up with her on the bed. She is OK today so I hope it is forgotten.
After being up all night I now had a doctors appointment with my rheumatologist. They have just moved to a new swanky building and were an hour and a half behind. In the 9 years I have gone there I have never felt rushed or that my symptoms were ignored. Well today I did. First off, he tells me he can't fill my pain creme because it has ketamine in it(along with ibuprofen, ketoprofen, amiltriptyline and carbazapine). He says he's not allowed anymore. I looked it up and it is a schedule III so unless I missed it, he should be able to prescribe it. I do not like being lied to, I'd rather he say that with the DEA up everyone's arse's watching what they prescribe, he's not comfortable prescribing it anymore.
Sorry for the long rant, just over this whole med thing. Go focus on something else especially now that it's been proven that it's not as bad as they have been saying it is.
Well last night it happened just like I knew it would. I was restless had gotten up for something to drink and did not see my dog in the middle of the floor and stepped right on her. She yelped like she was being skinned a live. She is a rescue and was kicked so I am thinking she thught I kicked her more than she was hurt. And that breaks my heart. I had a melt down. I put her in my lap(sort of, she's 60lbs) and just sobbed. She was shaking and I felt horrible. I don't ever want her to think I hit, kicked, anything her except love and take care of. I was exhausted and I know I over reacted, but I still feel bad.
So being a typical male, he blamed on me being up and fell right back to sleep while I curled up with her on the bed. She is OK today so I hope it is forgotten.
After being up all night I now had a doctors appointment with my rheumatologist. They have just moved to a new swanky building and were an hour and a half behind. In the 9 years I have gone there I have never felt rushed or that my symptoms were ignored. Well today I did. First off, he tells me he can't fill my pain creme because it has ketamine in it(along with ibuprofen, ketoprofen, amiltriptyline and carbazapine). He says he's not allowed anymore. I looked it up and it is a schedule III so unless I missed it, he should be able to prescribe it. I do not like being lied to, I'd rather he say that with the DEA up everyone's arse's watching what they prescribe, he's not comfortable prescribing it anymore.
Sorry for the long rant, just over this whole med thing. Go focus on something else especially now that it's been proven that it's not as bad as they have been saying it is.
I *ate bein* treated like a criminal because I need a med or meds t*at people look down t*eir nose about. A doctor s*ould know better! I understand your frustration. Do you live in Australia?
Also understand your frustration with the dr. I had a problem with pharmacy today and have to make 3 trips before my rx was right. It certainly doesn't help to have these problems when we're in pain already, and unnecessary running around doesn't help matters.
I hope you have a much better day tomorrow!!! Take care!
He wants lights ON at night b/c he's worried we'll be robbed. We live in a great area but lately we've had a few cars stolen in our suburb. Not that I wouldn't hear it- I'm awake almost every damn night! But why do we have to leave the kitchen light on? It annoys me b/c our 2 year old sees it and thinks we're down there and it's time to get up. Bu that's the old hubby-wife dance, isn't it?
My doctor did something similar with me. My real doc, who treated me for a decade, died last year. My new doc is a great guy, but he couldn't prescribe as my old doc did b/c of blankity blank rules that seem to change often. He was shocked that the 1st doc I saw in this area continued my old doc's prescription habit and even now he wishes that the pills came in a stronger form b/c he wants to be able to prescribe them as I had taken them for 14 years, but said that I'd be taking too many quick acting meds.
So he upped my long-acting and decreased my quick acting and that messed it all up. I was okay in summer but used to get through winter just fine b/c I HAD what I needed. This new doc knows that these "rules" are being changed and are not right, but he goes by them and I respect that. Still, I AM tired of the govt involving itself in how many pills I take. Live in my body a day and then tell me what you think!
Anyway, just wanted to say we're here, sorry you're having bad day. My night isn't going great either. I guess I can say "day" as it is almost 1am, and then retire for the night IF my body allows sleep tonight.
Hang in there, and know that someday we'll all get together and tell our stories. There's a lot of us and we can only take so much. The real story should be out there- the silly rules and ridiculous myths...someday. Till then, have a good one and try and start your day over in your mind. I do that a lot. ;)
I'd find another doctor ASAP
Hope this helps,
Rhonda, IN
Heather and ACDM, oh how I hate that! When we first got her she would duck and she still doesn't like anyone coming up to her in her bed at night. I so hope they know we love them and would never hurt them!
Thaliajen, LOL and yeah, this is th eguy for years who I couldn't get to turn off a light to save his life!!
Maddie, the creme is called PF gel and is a compounded med. It had 5 ingredients in it, ketamine, ketoprofen, ibuprofen, amiltriptyline, and carbazapine. My first Rheumy prescribed it.
Sisyphis, RSDhurts Yes it is ridiculous. I talked with my pharmacist today and he said there is no law in Florida that would prevent him from prescribing that. And my doc also said the ketamine didn't do anything which my pharmacist completely contradicted. He said the creme is crap without it. I have a call in to my doc for an urgent appointment to talk with him about this. I am done feeling like I am in the wrong and have an issue with drugs. If HE cannot prescribe it because he had a problem then that's on him but to make me feel like I am doing something wrong, uh-ha. So at least I will be able to tell him I was offended he lied to me but will probably end having to find a new rheumy and I really liked him.
Thanks again, really appreciate the support!!
I try never to burn my bridges in from of me....know what I mean?
Hugs.....jc..
Madman, Mark
And Jan CAN! She is lying if she says she can't!
They just know things like that.
I step on maggies little feet sometimes but then I do like you did..... i make over her and hug her.
I am sorry about the meds and the new swanky office instead of good quality service. I hope you can get this resolved.